I'm new here and am suffering. Looking for help

Brianna
Vestibular migraines/MAV is a relatively new diagnosis. There is such a thing as SILENT migraines which is why you (and I) don’t feel any pain. This is also why doctors have a difficult time making this diagnosis. I have suffered for literally, yes, literally 20 yrs! I cried when given the diagnosis. Started on Topamax 25mg and increased very slowly up to 75mg. It takes time, be patient. The side effects are scary, but I’ve been on Topamax for six months and haven’t noticed anything *except for the first couple of days after starting and after each increase. I have not used any of the other drugs or supplements so I can give no opinion.

I have some of the symptoms of the others on this thread but would like to add something important. Hormones, hormones, hormones! Seriously! Pay attention to symptoms while keeping track on your menstrual cycle. I thought all along this could be part of the problem but then other crazy symptoms would happen at other times.
Keep researching and good luck!

  • LaurA

PS. If you look up the symptoms of MAV, you’ll find hormones listed.