2 year Update

Just an update……it was 2 years with MAV on March 5th…… still only on the 20mg with my Nortriptyline cause we still have not heard about the ambulatory blood pressure test I had done in January. I hope we hear soon so we can up my meds and I can start to feel somewhat in control….Been migrainy lately…out of breath too which I hope is due to anxiety….Just want a life back……Still havign head pressure and severely off balance…

DD
Mine’s 3 years 26 March so can really feel for you. Don’t know much about your ‘ambulatory blood pressure’ test, can you elaborate a bit please? Anxiety is a big trigger for me so know just how you feel there too. What would you rate yourself 100% being perfect (hey wouldn’t that be great :stuck_out_tongue: !) And how do you describe your ability to function with day-to-day responsibilities and what are your obstacles? I hope you’re in a better position than you were 2 years ago, love to hear more. Thanks for the update!

regards
Judy

Well this past august I had gotten to 75% things weren’t too bad I was trying to regain small shopping excursions and the like (still wasn’t driving) I had spent all august packing the whole house cause we were moving in wih my mother in law in sept. Well sept came around and I got a nasty cold that completely hit my ears it really set me back dizzy wise all the way down to 25%. Then 2 weeks later I had the huge urge I was going to pass out….went via ambulance they said it was a vaso vagal but I don’t know what triggered it so my anxiety was through the roof and I didn’t get out of bed much for weeks cause I was terrified I would pass out and even when I did I refused to be left alone….I am a mother of two young kids so this was particulary hard for me and the almost fainting thing relally traumatized me and I cant seem to move past it….I had vaso vagal albeit not as severe quite a few more times I havent had one since I cut down my smoking to two cigarettes a day but don’t know how much correlation but still TERRIFIED they will come back….I hardly leave the house these days unless I am attending a birthday party or therapy….I don’t drive, I don’t shop……Flourescent lighting and over stimulation kills me……stress is probably my number 1 and I don’t know if I have any dietary except maybe spaghetti I am on the diet and have been for a year but dying for my pizzza back!!!

DD
that sounds really tough, I’m sorry to hear about it being so ‘full-on’ after 2 years, my neuro said that for every individual the time of ‘recovery’ varies so much, I just hope you can start to see improvements so you can get on with enjoying some small things that life has to offer. I like pizza too and would love to sit and eat a family size pizza all to myself! :mrgreen: Hang in there, I hope you’ve got a good specialist to consult with.
regards
judy