I’m Ellie, I’ve been looking at this forum for the last few weeks for information but its my first time posting.
I have had symptoms for around the last 6 weeks now, started with catching a cold from my son with runny nose, feeling a bit under the weather for a few days. I have thought I was prone to sinusitis for the last few years though now wonder whether some of these episodes could have been migraine, but I thought this cold then became sinusitis - I felt congested with facial pressure but no fever and only clear nasal discharge. I started using some high dose nasal steroid which didn’t seem to help and then developed this feeling of being constantly off balance with headaches and some nausea. The headaches were often right frontal, but sometimes all round the head and sometimes pain behind the nose/cheeks. I spoke to my GP after a few days and started 10mg amitriptyline for sleep/headache. I felt much worse the day after taking it so didn’t take it the next few nights and ended up trying some sumatriptan as somebody suggested it could be migraine, the first time I took sumatriptan it really helped and I felt almost normal again for a few hours. I then started taking amitriptyline again and after about 4 nights my symptoms were almost better. I found it really sedating and thought I would struggle at work so stopped it again and for a few days I was okay but then the headaches and off balance feeling then came back. I have started nortriptyline and been taking this for 6 days now at 10mg. I am also taking propranolol 40mg twice daily, was taking this for benign tremor some days but I have doubled the dose and been taking regularly to see if it would help as I tolerate it fine. I have also had an intermittent but persistent muscle twitch of my left upper arm near the elbow with a few brief twitches in other places which aren’t sustained, persistent eustachian tube dysfunction and real brain slowness with sometimes mixing words up or just finding things more of an effort than usual. The headaches and off balance feeling are better than they were but the nortriptyline doesn’t seem to have worked as well or as quickly as the amitriptyline but I was on annual leave when taking it so maybe was more relaxed.
Anyway, sorry it’s so long. It seems to have come a bit out of the blue although I have had a couple of migraines with aura as a teenager and some periods of sinusitis and headaches which may have been migraine in the last couple of years. I was wondering if you thought this sounds like MAV (have diagnosed myself with several things going along but seems to fit best with MAV) and was wondering if anybody had any advice about medication - should i just carry on with nortriptyline (I know it hasn’t been long) or go back to amitriptyline? My symptoms always seem better in the afternoons and evenings so sometimes wonder if some of it could be side effects.
Thanks for any thoughts and also for the forum, it was really a relief to find it and feel like I wasn’t going mad or making it up!