First acute balance issues: May 2010
Number & duration of acute phase(s): May 2010 (6 weeks), Dec 2013 - 2017/18, Oct 2019 (ongoing)
Any suspicious physical event/trauma leading up to dizziness: Syncope/Vertigo Attack May 2010 (hit my head)
Start of chronic phase: Dec 2013
Age at chronic onset: 33
Started medication: no medication
Number & type of consultants seen to date: Ents, Neurologists (many over the years)
Diagnoses received: Bppv and chronic vestibular Migraine
Medications used successfully for MAV: I received cortison infusions to treat status migraine / acut vestibulare Migraine
Failed medications for MAV:
Non-pharmalogical treatment tried which helped: Magnesium and Vit B2 supplements
Non-pharmalogical treatment tried which didn’t seem to help :
Dietary triggers identified: I try to avoid histamin rich foods
Any hearing loss in either ear: Yes, hearing loss (high frequences) in my left ear
Persistent or intermittent tinnitus and character: Yes, high-pitched (melodic) tinnitus every day, which turns into a loud roaring sound, when things get worse
Other chronic conditions I’m suffering from: Allergies
Medication I’m taking for other conditions: Levocetirizin (5mg) resp. Cetirizin (10 mg)
Any personal history of migraines: Yes, 20 years of Migraine Headaches with nausea etc.
Any family history of migraines: Yes, sister, mother and grandmother
Any history of ear problems: otis media (as a child), tubal catarrh most winters due to my allergies
How did friends, family, and doctors react to your symptoms?: Most doctors weren`t very helpful. Up until this year most of them dismissed my symptoms as psychosomatic.
(Your current state) Not so good, i try to survive every day
What’s Gone: (what symptoms you had but no longer get) Most Aura-Symptoms: Tactil and body hallucinations (feeling my hands spin; feeling my tongue spin; feeling like a mosaic, that breaks into pieces etc.), Numbness of my legs and arms; Extreme vertigo attacks with shaking, lightheadedness and trouble breathing; Extreme spinning sensation and feeling like being a combat jet test pilot, clogged ears, the feeling of fluid in my ears etc.
What’s Ongoing: (what symptoms you still get) Bppv (spinning room etc.), pulling and rocking sensation 24/7, Nausea (almost everyday), sleeplessness, extreme vertigo with racing heart and hot flushes lying down and turning over in bed, trampoline floor, Ear Pain, Face Pain etc.
My Worse Day Now: (description of the worst day you get now)
My worst days: Status migraine this year; I woke up from my sleep every night and felt like i was dying
(a bulleted timeline of your history from very first symptoms. Don’t make it too long, a “page” is enough. This is more freeform)
- It all began when …i went to a yoga-class in oct 2019 and had a bppv attack afterwards. The doctors i went to weren`t very understanding, i was told i had a psychosomatic disorder, and my symptoms worsend every week until i was bed-bound. In February 2020 i spent a week in hospital and finally got my diagnosis. I was prescribed Amitriptylin, but i never tried it (mostly because it interferes with my allergy medication)
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