First acute balance issues:
Number & duration of acute phase(s):
4 large spells
Any suspicious physical event/trauma leading up to dizziness:
Start of chronic phase:
Age at chronic onset:
Number & type of consultants seen to date:
Diagnoses received (one I’m “running with” first):
Medications used successfully for MAV:
Failed medications for MAV:
Nort due to insomnia
Non-pharmalogical treatment tried which helped: unsure but recently bought bracelet
Non-pharmalogical treatment tried which didn’t seem to help :
Dietary triggers identified:
Any hearing loss in either ear:
Persistent or intermittent tinnitus and character:
Other chronic conditions I’m suffering from: none
Medication I’m taking for other conditions: none
Any personal history of migraines:
Any family history of migraines:
Any history of ear problems:
How did friends, family, and doctors react to your symptoms?:
(Your current state)
What’s Gone: (what symptoms you had but no longer get)
Wouldn’t want to tempt fate by saying but running 90%
What’s Ongoing: (what symptoms you still get)
My Worse Day Now: (description of the worst day you get now)
Worse day is trampoline floor
(a bulleted timeline of your history from very first symptoms. Don’t make it too long, a “page” is enough. This is more freeform)
- It all began when …
- The first thing I did …
Start of Journal
Excuse me if I’ve missed some questions or laid it out wrong.
I’m going to keep it brief because I’ve had MAV since I was 20 and I’m now 35 so too much too mention.
I’ve had large chunks of my life with little symptoms so could live happy and normal. This was using 20mg of Ami a night. My most recent and worst spell was December 2017 it was off the scale I was knocked for 6 with chronic symptoms I spent the whole of 2018 seeing consultants who all looked baffled when asked how I should treat it. I had my diagnosis of MAV in 2012 but this didn’t seem to get me anywhere.
In September 2018 I saw Dr S in Blackheath and he prescribed me Nort I swapped Ami to Nort In straight swap but by December I could no longer sleep so I switched back to Ami. New year 2019 Still no sign of improvement spoke to Dr S and he said stay on Ami and start venlafaxine 37.5. I did this around March 2019. I had slow but steady spells of improvement moving up from around 40% to 80% by summer time I was as stable as I’d been since 2017 so was making the most of it. I still had bad spells lasting anything from a day to a week with a good 2 week interval which was a big change from chronic symptoms not being able to go out without sunglasses on a full day.
I increased dose as advised by Dr S until my symptoms decreased. I now take 2 x 37.5 in morning and 1 x 37.5 at lunch and I’m happy on that for the time being. I’m now around 90% which has give me my life back so I have to pinch myself some days. Was it Venlafaxine (Effexor) that improved me.? Possibly it’s just hard to say but I’d advise anyone who’s hit a brick wall who hasn’t tried it to give it a chance and never give up hope. Another alternative treatment was a bracelet I bought in November which contains different minerals designed to help balance. Sounds like a con but I’d be Lieing if I said my mav hadn’t improved since I wore it so I will be wearing it until it falls off my wrist.
I even managed to pass my motorbike license in the summer which would of been a fantasy couple years back. I still have my bad days but on the whole I’m doing ok at the minute so hope this gives some hope for those of you feeling trapped in hell. Someone on here once reminded me of one of Winston Churchill’s famous quotes “ IF YOUR GOING THROUGH HELL KEEP GOING “
Bracelet link below