First acute balance issues:
Number & duration of acute phase(s):
Any suspicious physical event/trauma leading up to dizziness:
Start of chronic phase:
Age at chronic onset:
Number & type of consultants seen to date:
Diagnoses received (one I’m “running with” first):
Medications used successfully for MAV:
Failed medications for MAV:
Non-pharmalogical treatment tried which helped:
Non-pharmalogical treatment tried which didn’t seem to help :
Dietary triggers identified:
Any hearing loss in either ear:
Persistent or intermittent tinnitus and character:
Other chronic conditions I’m suffering from:
Medication I’m taking for other conditions:
Any personal history of migraines:
Any family history of migraines:
Any history of ear problems:
How did friends, family, and doctors react to your symptoms?:
(Your current state)
What’s Gone: (what symptoms you had but no longer get)
What’s Ongoing: (what symptoms you still get)
My Worse Day Now: (description of the worst day you get now)
(a bulleted timeline of your history from very first symptoms. Don’t make it too long, a “page” is enough. This is more freeform)
- It all began when …
- The first thing I did …
Start of Journal
Hello all it’s my 4th week on pitz so figured an update was in order … I have seen slight improvement in a few areas .
*First my light sensitivity has lessened . I can watch tv more and look at my phone .
The spaced out feeling has lessened ever so slightly
The 247 shimmery aura is no longer 247
For 3 weeks I am sure this please god means I am on the right track ! However I am sure it will take many months to see more improvement so I’m being patient
The things Bothering me are rocking imbalance but like @turnitaround has said I figure this will linger for a while ! Also I still can’t walk out on to a busy road or place things just look off like I’m wearing the wrong lenses and the spaced out sensation gets a lot worse . However like @ander454 has said to me this faded gradually . So I’m hoping with time it will lessen. Also visual snow ! However I suspect that’s gonna take a while to go too!
For anyone reading don’t be scared off pitz so far it’s been the kindest med I’ve tried . It has NOT made me worse . Whereas some others had made me a lot worse . The tiredness was bad but only for 2 weeks now it’s fading . I am hungrier for sure I’m trying my best to stay active and watch my intake so far so good hopefully the hunger fades as it’s annoying but not unbearable ! I am also very bloated on pitz but again hopefully it goes and these are minor in comparison to some other meds.
Anyways that’s my update curious if anyone else had the odd sensation outside and in busy places and how long it took to completely disappear and they felt semi normal again ?
My goal is to be on a plane and take a much needed holiday when I achieve this I’ll know I’ve made milestones in recovery .
Something @turnitaround wrote that really resonated with me about recovery and realising that you are actually improving was mental health . I was solidly crying gor 6 months or so then I stopped crying and realised it was because I was making small improvements . Also the brain is a funny thing once one symptoms dissapears you forget and focus on the remaining symptoms this makes u think your not improving but you are .
I do think recovery is slow more over months rather than weeks I’m almost a year in and would say I’m 50% better from where I started I used to this that was odd now I think it may be the norm but who knows. I think this illness is massively misunderstood and there simply isn’t a quick fix . You have to be strong to get through this mav shit storm! Anyhoo I wanted to share my progress because when all I could do was sit in bed it was this board that got me through