Hi Natasha
If you only took the Temazepam for 3 weeks it would be unlikely that the tingling is due to that but it is possible. Withdrawals from Benzodiazpeines usually occur after longer term use such as months or years.
Tingling face can be a symptom of migraine or many other conditions. I’ve had it since age 13 when I first experienced migraine symptoms and I used to find it the most scarey as numbness always followed. Now the symptoms are under control it rarely gets that far.
Hope this offers some reassurance.
Sian
Thanks Sian.
The reason I thought the meds could be something to do with the tingling is because my dizziness started in June last year, and the tingling only started in September right after I had stopped taking the temazepam. As the tingling didn’t start with the dizziness I am just trying to find a reason for it thats not ms! The tingling is there constantly even when I’m not too dizzy
I’m waiting for the results of my recent MRI scan so hopefully I can put all of those fears behind me
Natasha
Beatles909, have you tried any of the gaze stabilisation exercises for your vision problems? Also, did you have all the inner ear testing done before you were diagnosed?
Natasha
Hi Natasha,
Yes I did have the inner ear tests done. All of them. I did do the gaze stabalization exercises too. They really didn’t do much though. Although they did seem to make the right side vision better, but not by whole lot. I’m going to try strict diet and exercise and regular sleep patterns. I just took myself off nortryptaline after 8 weeks. That did’nt seem to help a whole lot either. I’m gonna try and beat this the natural way. I’ve done a lot of research on how and what ways to eat certain foods and types of exercise to do that basically give you the same effect as antidepressants do. Except doing it the natural way through diet is much more healthier for you and more effective anyway. Ever since I’ve been hit with this nasty illness I haven’t done much. But I will force myself to keep on going. I know the first week will be a very dizzy and unpleasant week. But after about 2 months of work, I should feel like my old self again. That’s the goal. Aerobic exercise and diet is an important key to this I think, cause it’ll make the chemicals in your brain start to become more balanced. Once that happens, the blood vessels (which I believe are responsible for migraine) should start to act normal again and should relieve migraine symptoms. But in order to get to that phase, you gotta stay less stressed (which is where aerobic exercise helps tremendously anyway), and knock out things that cause blood vessels to act in a negative way, like caffeine, chocolate and MSG. I know there’s more possible triggers, but those are the most common I think. I plan on jogging in the morning before work cause it should give me better blood circulation throughout the day. Eat whole grain carbohydrates and certain meats that promote seratonin. Add in fresh fruits and vegtables as well. Of course only bottled water too. After 2 months of dieting like this and probably have a few meals a per week that are junk meals, I’ll be shocked if I’m not back to normal or close to it. I’ve just been so discouraged over this dizzy stuff It seems as if I’ve given up on life and haven’t done anything since it all started. Another reason I’m gonna try this way is because I’ve seen a lot of stories on here and I know my symptoms are debilitating for me, but some people on here have had this a long while and get the spinning vertigo and heavy headaches and probably need more help than just getting up and dieting and exercising. I just got this less than a year ago and I never get the heavy headaches or spinning vertigo. But motion sensativity and constant drunk feeling is what kills me. We’ll see if it works. Like I said, I have a 2 month goal for signs of improvement. Once my brain is used to the new way of life, I’m ready to enjoy everything again. I can’t wait. I’m pretty confident that it can be done.
Greg
Hi Cookie,
Sorry come in to this discussion late, but just to say I am in London and was, after much shenanigans and disbelief by doctors, diagnosed by Dr Rosalyn Davies at the National Hospital of Neurology and Neurosurgery in London. She is a neurotologist in the neurotology department. Some neurologists are still misinformed about MAV. I now see a neurologist at the same hospital, they do know about it and are completely conversant and up on the fact (and it is a fact) that migraine symptoms can be constant. It is also nonsense for any doc to suggest you can’t have MAV without spinning vertigo. I started off simply lightheaded, full ears, tinnitus, and numerous other weird and vague symptoms.
Get a referral to one of the neurotologists recommended here. Dr Davies is massively approachable, friendly and knowledgeable, I can’t recommend her enough. She runs the neurotology clinic there along with Dr Linda Luxon. I was very happy I saw Dr Davies. I had to push my GP to refer me there, I had already seen two ENT’s who thought I was suffering from anxiety, when the only thing I was anxious about was how ill I felt. I was also tested for MS initially with a brain scan.
Wishing you well,
H
Natasha - I’d just like to second what Hannah has just said. I also was diagnosed at The National (part of UCLH) by dr davies’ colleague Dr Bamiou, another neurootologist who’s very approachable. Just need to persuade your GP to do the referral! Good luck.
Dizzy Izzy xx
Hi Everyone
Just an update. Had all my tests done and went to see the consultant for my results last night. The evoked potentials were all normal so he was happy to rule MS out, but the MRI showed I had an obvious Chiari Malformation and so the neurologist said that is whats causing all my symptoms, and he is referring me to a neurosurgeon for further action.
I knew what it was before he said it, so it wasn’t a shock, but I still feel that I may have migraine too. Today I am dizzy and my sinuses hurt, and the Heal your headache book describes me exactly!
Does anyone know much about this Chiari Malformation thing?
Natasha