Anyone out there suffering from vestibular migraines too?

Iā€™ve had no side effects so far on the nortriptyline and my neurologist has been reassuring saying I need to persist with it and it will eventually start to make a difference.
I have dizziness and migraine / daily pressure headaches. I was diagnosed with a migraine variant balance disorder.

Hi Lucy
Thank you for your reassuring wordsā€¦how long have you been on nortripalyne for? Iā€™m only on day 5 @ 10 mgā€¦Friday it goes up to 20 mg an a week later 30 mg an stays there
Thank you
Michelle-

Hi michelle, Iā€™ve now been on nortriptyline for 3 months. At first I titrated up every 3 weeks, on the lower doses. My neurologist now wants me to stay a bit longer on the higher doses, six weeks is what Iā€™m going to try and do on 50mg.

Hi Michelle,

Some people respond to dietary changes and some to medication with the alterations in diet. In my case Iā€™m approaching 4 years with two periods of ā€œremissionā€ (2 weeks and two months). It can be a rough road if you are in the US as it is not really taken seriously in the severely chronic cases.

Good luck.

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Not that itā€™s much consolation to you for sure but youā€™d have a much rougher experience here in the UK. Many places itā€™s not even acknowledged as existing! I think everywhere really one needs to be oneā€™s own advocate and self motivated to work yourself through it. Thereā€™s not much help about. Helen

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Hello everyone,
I must say I have been very happy with my personal success on nortripalyne Iā€™m at 40mg an started it in April, Iā€™m functioning again an even started real estate classes, Iā€™m very happy to
Of gotten my life back- 80% Iā€™d say. Still
Slightly lightheaded but easy to
Handle an deal with from where I came fromā€¦ bedridden for months on end from crazy VM symptoms an dizzinessā€¦I see multiple neurologists an even saw a ENT neurological specialist- all from Stanford in California, they all collaborate an I get so many points of view itā€™s amazing to say the leastā€¦I pray you all find some sort of relief,as I have, from your debilitating VMsā€¦:wink:

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Hi! Did you try effexor or magnesium suplements ?

If you use the siteā€™s Search facility you will be able to find a lot of information about Effexor and magnesium supplements. Or you could PM @MissMigraine if you wish for a personal conversation. Otherwise please try to keep your posts relevant to the title thread. Helen