In the past few days l have awful burning of soles of my feet at night, and it has stopped me from sleeping.
Rung my neurologist and it states in his form that l have early signs of peripheral neuropathy, which is damage to nerve endings. I wonder if this has anything to do with MAV, or any way related? I have an appointment with him in 2 weeks.
I just hope it’s not MS. I just couldn’t get through that. Sick is being sick. First MAV and now this.
Hi Sue
This began for me last year about 5 months after developing MAV (but not diagnosed at that stage). I’ve had burning soles of my feet at night for a year now but only when I lie down in bed!! Had some weird diagnosis from the docs early on then eventually, when plaques formed on the soles of my feet a dermatologist diagnosed psoriasis probably caused by the stress of MAV. However, the dermatologist insists that the burning feet are not related to the psoriasis. He has spoken with other dermatologists & they have never come across the two being connected.
My doc diagnosed peripheral neuropathy and when I saw Dr Granot in Sydney for MAV treatments he did loads of tests on my feet & legs and all reflexes were fine & he was unable to find the cause of the burning feet at night. It is a real pain because when you have MAV the one thing you want to do is just get some sleep & forget it all!!
Dr Granot said that the tricyclic antidep. he prescribed (Prothiaden) might help which I think it has, to a degree, now I’m on a higher dose (100mg) + half an Ativan I get to sleep quicker.
My crazy bedtime routine is: soak feet in cool water for quarter of an hour, dry & moisturise, get into bed have covers off my feet and if I’m lucky I get to sleep. If I don’t, I get up and repeat the routine.
My doc also prescribed Lyrica for the burning soles of feet which I haven’t tried yet as I already take enough drugs to open a chemist shop! (I now take methotrexate for the psoriasis + the MAV drugs, + high blood pressure tabs, + thyroxine for hypothyroidism!!)
Let us know what your neuro recommends - don’t worry about MS it’s probably just nerve endings being extra sensitive I think.
Barb
What worries me, is lately my MAV has settled and l have felt like my normal self in that regars, and l have been out with the mums and then again with friends, so two big drinking sessions within a month. I drank more than l normally would at home, to the point when both times l have had to stay on bed feeling sick, which is unlike me. I hope l have got Alcoholic neuropathy. How would they diagnose this anyway?
You see l am have major anxiety over this over the past 2 days, because l don,t want to suffer with burning feet for the rest of my life, and fear it may get worse.