Sometimes more like 6 weeks and you donāt really know until you titrate up to an effective dose and then hold that 4-6 weeks. Med trials, like everything else about MAV, are a marathon.
1 Like
One of my biggest concerns is āis this situation permanent or you are going eventually heal and go back again to your normal self?ā
1 Like
Mileage varies. Most of us get better enough to be happy and thrive. Some heal completely. We have biologically unique migraine brains. That doesnāt change. We change how we approach life to work with what we have.
2 Likes
Yes @Onandon03. That was supposed to be a āwasnātā ā¦brain is working at a minimum today lol
2 Likes
The weird thing is that I wasnt so sensitive with motion stuff or lights or anything. The only prob I had was some loud sounds on concerts lol (you know when you hear it you get a dizzy spell for like 3 secs). My doc mentioned that MAV can be caused from pushing yourself a lot doing many things from lifting weights to trying to stay awake all night long (as I did).
That is some solid VM preventative treatment ! You can take the Ami at night along with the gabapentin if you feel sleepy during the day.
1 Like
Yep but look at it this way itās likely to be the only Marathon Iām ever likely to succeed in!
Letās be kinder to ourselves, we donāt need to be so hard on ourselves. I was reading only last evening tricyclics can be expected to take 4-6 weeks on average to work for any condition. Thatās somehow reassuring - we are not so far off being run of the mill as previously thought. Itās the drugs fault, not ours or our MAV. Helen
2 Likes
Yeah aftet two months of searching the neuro-otologist told me that I have VM and put me straight to these meds. While I was searching on the forum many people here started ami later not right away I dont know if this means anything. Somtimes ami makes me sleepy some times not to be honest. I have no idea why lol. Just to be sure MAV and VM is the same right?
Yes MAV and VM are the same
1 Like
As is Migraine Variant Balance Disorder. But you canāt use that or VM as a prefix. So you canāt use words like MAVericks (us) having MAVtastic days (put me out of my misery days) or just MAVy days (I can function, sort of).
4 Likes
Random update
I went to neuro-oto yesterday he told me that he saw improvements since the last time (on the balance tests). He also saw that I have less nystagmus on the rotate chair. He said that the weird feeling on my eyes and the delay I have is cause of the CFS fluid which rises the pressure on the head. So I will continue my meds for a month amd a half and then go to see him again. I decreased minitran to the half and raised propanolol to 20mg.
3 Likes
Great stuff, Kon, keep going!
1 Like
The āfunnyā thing on this is, I am not feeling better at all since all started related to my eyes lol. I hope my eye sight gets better and my reflexes.
Anxiety. Helen
Never had a problem like this with anxiety if I understood your reply correctly.
The Anxiety about the uncertainty of it all is subconsciously stopping you feeling progress.
1 Like
I forgot to mention something. He told me that the ārockingā sensation I may still have after some time is cause of my body muscles, he said exactly they need to be trained evenly you must not stay still while you are on the healing period.
2 Likes
Exactly, always keep moving. Walk every day even if you puke.
4 Likes
I tried to sleep for as long as I could because I wanted to have my eyes closed as long as I could. After 13 hours of āsleepingā I woke up without headeache or dizziness until I opened my eyes. My eyes felt good without pain except from the wobbly vision when I move my head or my eyes like I am drunk and even worse. After an hour I started feeling pressure on my forehead, sinus and cheeckbones, inside my eyes from the noseās part and a lot of dizziness plus of course a lot of anxiety. Is this normal for VM? This feels like a vestibular dysfunction to me and the problem is that you canāt be sure if this is the condition.
1 Like
We can speculate āfor everā. Pretty much anything is normal for MAV. Could well be sleeping too long did it. MAV likes routine. Same every day. Thatās why some people get migraine every week-end, due to having a lie-in. Helen
1 Like