One thing you could check into is vertical heterophoria:
Could It Be Your Eyes? Recognizing Vertical Heterophoria
https://www.vision-specialists.com/articles/blog/could-it-be-your-eyes-recognizing-vertical-heterophoria/
VERTICAL HETEROPHORIA (VH)
https://www.dizziness-and-balance.com/disorders/visual/vertical%20heterophoria.html
I really dont know what to do next. I will wait for a month to see again the doc and discuss about dosages. @Manatee I have searched a lot abou vertical heterophoria but the sad thing is that in my country none can check it properly as I searched, and I had/have a strong feeling sometimes this is the problem.
An ophthalmologist at the hospital can tell you for sure. Itās not particularly common VH so itās not particularly likely. Sometimes people are born with it though it can be acquired as result if an accident (to the head, neck or I assume) If you do have it some people can tolerate vertical prisms some cannot. But what you have to remember is your eyes just gather visual information for your brain to interpret. If your brain is overwhelmed as in MAV it could well be at the moment your brain cannot cope with controlling the VH which it was doing easily before it was overwhelmed so we are back to the brain being the root cause either way. Helen
Far more likely is eye issues are caused by Vestibular Occular Reflex (VOR) misfires, I suspect.
Absolutely.
Well this is more scary to have VOR problem. If you move only your eyes qith a steady neck, does VOR activate?
From my research on VH you need some gear to diagnose it because the missalignement is too small, it cant be seen with bear eyes.
Believe me. They would have the necessary equipment. Iāve been there, done that one.
I went once to a hospital to check my eyes and the doc done a lot typical tests, covering my eye while focusing on her finger and immidietly covering my other eye. The equipment they had only was the typical machines with the balloon and the one which checks nearsightness and farsightness. Sadly our public hospitals are pretty bad.
Donāt worry about it. If facilities arenāt available forget it. I would think Itās unlikely you have VH anyway. Your current vision issues with MAV stem from the overwhelmed brain. You do need to try to relax more, believe your diagnosis and find some calmness in life to alleviate your extreme anxiety. That would help you as much as anything. Try going for a quiet walk or swim or whatever you enjoy doing exercise-wise. You need to prepare your mind into accepting this is going to be with you for some months to come. Itās not going to disappear suddenly. You need to prepare to sit it out.as calmly as possible.
I am feeling better now at 35mg of Ami, each time I titrated up I felt terrible though for a few days to a week. Itās been 4 months on the meds now and I still have symptoms and good and bad days. The neurologist said it would take a year on the meds to I assume feel close to normal again. I had my eyes checked and didnāt have VH. If you arenāt on the right dose the meds wonāt be able to cover up your symptoms, for me at lower doses I only had a very small improvement. I havenāt avoided lights either because I still work full time in computers under fluorescent lighting. The most important thing you can do is experiment with dosages, donāt try and rush the process give you body time to adjust to each increase. Going up by 5mg has really helped me feel less terrible I think. If your meds arenāt working ask your doctor if you can try something else
Today my right eye hurts like someone punched me. Meds are doing nothing right now. How do you manage to work on a pc? Everytime I am trying to use it once more I am feeling like my head is gonna explode and my eyes cant keep up on cursor or even just looking on the screen. @jess38
Use f.lux, take frequent breaks. Unfortunately a lot of us have to go on a screen diet for a while. Nearly impossible in the modern office, I know. If youāre working under artificial lighting, buy some migraine tint glasses. I like Theraspecs.
I always worked/play without lights and sonetimes with the classic desk light (dont know how to say it on english lol). Currently I am all day on my phone and tv. I am using a special setting from my phone for reduced blue light.
Yep, I went 8 months once. No computers. No TV for most of that time then tiny bits with an accompanying bucket. A good mantra is āTrigger Avoidance, Trigger Avoidance, Trigger Avoidanceā. Thereās no point throwing drugs at it to calm it down whilst you are constantly winding it up again with computer screens. Tinted glasses did nothing for me. Soon as the screen moved so did my stomach muscles every time. That near point staring at the one spot same as driving would get me every time. I donāt see how anybody truly acute with MAV can tolerate computer screens. Helen
That could be making everything worse. If you are light sensitive you should stay in even consistent light all the time. Look what happened when you went outside - in the dark? - to phone by the tiny patches of light that are street lights, they danced. Try keep the whole room evenly lit. Not light and dark patches and donāt look at any device which is very much brighter than the background you are holding it against. Beacons coming out of the dark are worst thing for photophobic MAVers, Helen
The tint is for the photosensitivity. Thereās nothing to be done for the motion sensitivity and visual vertigo other than trigger avoidance, meds, time and VRT when you can tolerate it.
Plus moving, dappled sunlight. Took my healthier self on a nice long walk with the dog. Nearly had to abort when passing a long slatted fence with the morning sun behind it. That was an hour ago. Iām still queasy and scent sensitive and my vision is dancing.
Walking to work past slatted fences is the worst! It used to make me extremely dizzy, better now but still notice it
I think maybe your symptoms were worse than mine Helen as Iāve never vomited just had queasy nausea which is now gone. Working on a computer and under the lights has been difficult but for me I was always most affected walking around, sitting still looking at a computer felt reasonably alright for some reason, but not to say it didnāt trigger the awful dizziness walking around it probably did. Standing up with more than 1 person talking to me is very difficult for some reason, if Iām sitting I donāt feel as bad. Itās like brain overload feeling with a wavy dizzy feeling