I’m sorry that you have this MAV rubbish Richy, it’s so hard to accept or get any relief 
I agree with the above poster though and i think if you drive yourself mad trying to find out a miracle cure you will just ramp up your stress levels and make your symptoms worse. Can you find something to do that you find relaxing and just try to not think about it all too much day to day, i know how hard that is though.
Hope your future is better with this.
Hi Richy:
You asked: For those suffering with constant disequilibrium e.g.
- feeling of floor moving below your feet
- feeling of rocking
- walking on marshmallows /trampoline
- fear of falling when standing
Has anyone found any trigger that has helped to overcome this e.g. food / stress etc…
I had all these symptoms when MAV first began. The Dothep has helped but when I’m standing still the disequilibrium is still a big issue. It worsens with head motion, car/bus/train travel/bright/fluro lights/pc use/tiredness, etc. It is very hard to avoid these triggers when living a ‘normal’ life!! I’m have a gluten free diet (have been for about 20yrs) and avoid other food triggers.
I’m hoping that Topamax (which I’m just starting) will help with the disequilibrium.
Barb