Dizzy free

Hey all,

I thought I would share that the last week and a half have been totally dizzy free. I have been dizzy so often over the last 3 or 4 years and so on guard for the dizziness, that it took me a couple of days to realize that I was dizzy free. I know I should have taken advantage of it and get out of my chair and do something, but I was afraid of starting things back up. In the end, I sat around the house appreciating the fact I didn’t have to constantly tell myself that I wasn’t moving and neither was the room. I was able to think through the whole day, and hold an intelligent conversation with my wife at bedtime. Alas though things have started moving around again as the dizziness has returned.

Here’s the kicker, the only thing that my wife and I can figure out that I did different was that we went to an amusement park for 3 days, and took a much higher than normal dosage of valium so that I could tolerate the rides, hills, and all the people moving about the first two days. I had to drive home the 3rd day, so I took my normal dosage for dizziness prevention, and sat the funner rides out. I normally only take 2.5mg, MAX 5mg when I am dizzy, enough to get me though something I ABSOLUTELY HAVE to do. The first 2 days at the park I took 15mg, and fell asleep as shortly after we got back to the park’s hotel. Since then, my routine has gone back to normal, and I haven’t been dizzy, until yesterday.

I’m going to talk to my doc about it next time I visit him, but in the meantime, I was wondering if anybody had any comments.

I really think the Valium is the key, it has a super long half life so chances are the dizziness will come back. But at least you know how to fix it!!
Kelley

my comment is pass the valium :lol:

Valium allows you to go on rides at amusement parks :shock: Valium is proving to be a top drug for this illness.

Have you taken any in the week since you got back? How long does this stuff stay in your system?

Christine

I actually think Valium can ‘kill’ persistent migraine, but possibly only if taken relatively early (a few days in). Here’s a couple of experiences I’ve had. Both were pre MAV diagnosis so I had no idea what I was dealing with (so unlike my ‘usual’ migraines).

Scenario One.
Travelling in South America (so probably still a bit jet lagged). I caught a bus through the Andes from Santiago to Mendoza. It was at high altitutde (which turns out to be a trigger for me), a very hot, sunny and glarey day (also a trigger) and it is a very very very winding road. That night I had a glass of red wine with dinner. A perfect storm of triggers in retrospect. The next morning I felt appalling. As I had abdominal symptoms I assumed I had a tummy bug (I’ve had this since though and I know it’s not, it’s abdominal migraine - no diarrhea but lots of gurgling, rumbling and pain). I felt completely out of it (derealisation), shaky, sick, unsteady and the general ‘I’m dying’ feeling. I was so, so sick there was no way I could do the 24 hour bus trip I’d planned to Buenes Aires. So I flew. On arrival at my hotel I asked to see a doctor (but he didn’t come). By then my neck and shoulders were so jammed I was in agony. I made no connection that this might be another symptom of whatever was wrong with me, I just assumed it was a bad neck. So… I self medicated with Valium and had a nap. A few hours later I woke up almost fine.

Scenario Two
A couple of months later, similar scenario on holiday in Cyprus. Again, I assumed I had tummy bug as I had the abdominal problems again. Again, so sick I couldn’t travel. In absolute misery. Still no idea I was dealing with migraine. When I did have to fly home I again self medicated with Valium (because of my fear of flying) and again, for a few weeks after I got home I was actually pretty good.

So, based on those experiences I have no hesitation reaching for the Valium. Kill that shit and kill it early.

Christine, yes, I have taken Valium since the park, I occasionally use it as a sleep aid if I am wide awake at bedtime.

At the doses I am willing to take, it lets me on some rides, the milder roller coasters, and the kid rides. :lol:

Thanks for the comments all, you all seem to support my wife’s theory. The long half life was not something we considered but seems to support what I have been experiencing. Definitely something to talk to the doc about. :slight_smile:

Brian,

Great news about the dizzy-free days. And interesting about the benefits of an increased dose of valium.

I had a similar experience recently. I am in Asia (Taipei) and have been doing a lot of flying. The other day I flew to Beijing on a really brutal flight. After I landed, I was hit with the Beijing pollution, long cab ride, nothing to eat, had to go to the office, etc. I was a wreck, shaking like a leaf, holding my head. That night I took what was for me an increased dosage of Klonopin (still under 0.5mg) and slept like a baby and felt great all the next day, still a tiny bit dizzy but quite able to work, eat with colleagues, sing karaoke etc. I was thinking, “I could live like this.” The fly in the ointment is the fact that benzos are addictive, and since I previously (18 yrs ago) had a stint in rehab due to alcohol and ativan, I am very leery of benzos. The fact that benzos work so well is rather a cruel thing for me because I feel such guilt and failure when I take them, but they truly help me without any side effects other than dependence.

My doctors say they prefer me on an anti-depressant versus a benzo but I am not sure if they are that much safer – you still need to taper down, and they have lots of side effects. My question is similar to yours, I think: What if a benzo is the answer, what happens then?

Please report back what your doc has to say, and how you are feeling in the next week or so.

Doug

Doug,
My doctor says that some people are GABA deficient, and truly need a benzo. Klonopin is dosed up to 20mg daily for epileptics, so the body can handle much much more than we are taking. I have not needed to take it more often, or increase my dose in over a year. I would rather an addiction than a tolerance…as long as it’s working and I have supportive doctors, I would rather that than the lack of quality in my life…my big fear is it stops working!!
Kelley

— Begin quote from "Victoria"

Kill that shit and kill it early.

— End quote

I like this. A lot. :lol:

I also had few problems at Disneyland back in early April using Ativan. I did not go on the spinning rides or roller coaster in California Adventure, but I was feeling pretty darn good for the most part and enjoyed the rides.

That’s great that the high dose of Valium helped you! (And others using benzos.)

I’m the opposite. I took a 5 mg Valium once (before an MRI) and got pretty dizzy. Tried Ativan a few times (at neurotologist’s suggestion) and after about 5 hours, I’d be DIZZIER.

Everyone’s a bit different, it seems…

Nancy

Doug,

I’ve tried antidepressants and about the only thing they did was make me depressed, and/or gave me headaches. I don’t like the idea of high dosages of benzo’s not only for the addictive reasons, but also because it is very hard for me to stay awake.

When I was at the park, I had to keep moving or fall asleep. My alertness was almost non-existent, at one point I had to have my wife help me remember what I wanted off of the menu until we placed our order. Driving was also out of the question, :lol: so when I do go to an amusement park we have to rent a hotel room on the park campus so that I don’t have to drive.

I also don’t have any appointment set up with my doc at the moment, so it will be a while before I talk to him. :frowning:

i got a 2nd opinion today from an inner ear specialist who looked at my mri results and let me know that my inner ear is fine, which is great, but would love to know why i am still dizzy 24/7.

anyway, he was CLUELESS about mav, as most dr’s are, and was rambling about why the heck i was on topamax and obviously it wasn’t working. he then preceded to ask if i had ever tried valium. i told him i had but i stopped because it was only temporary and it can be addictive. he told me it’s not addictive (??) and gave me a 30 day px for valium. he wants to try to stop a cycle and try it for 30 days at five mg, then next month at 2.5 mg, etc.?

has anyone tried this? i’m thinking this is a bunch of hogwash and probably not going to do any good in the long run???

even to have a few days of non dizziness must be amazing! i have forgotten what that feels like…

— Begin quote from "longshort"

I feel such guilt and failure when I take them.

— End quote

NOW YOU LISTEN TO ME MR!!!

You are NOT a failure and this is HORRIBLE illness that requires meds with SERIOUS clout!! Got me??!!!

What you went through 18 years ago was then. It’s in the past. Done. Forget it. You are now in a whole new arena and this is not you CHOOSING to take Benzos - MAV is leaving you NO CHOICE.

I am so humbled by the fact that you’ve even offered to share with us about your previous addiction. That speaks VOLUMES!

We are here, we are your friends and the first sign of anything changing addiction wise, you hollar at us and we’ll be your backbone to get you through it.

I dont want to hear you mention the word FAILURE again. Period.

I trust we’re clear on that my friend? :smiley:

— Begin quote from "ilovesalem"

i got a 2nd opinion today from an inner ear specialist who looked at my mri results and let me know that my inner ear is fine, which is great, but would love to know why i am still dizzy 24/7.

anyway, he was CLUELESS about mav, as most dr’s are, and was rambling about why the heck i was on topamax and obviously it wasn’t working. he then preceded to ask if i had ever tried valium. i told him i had but i stopped because it was only temporary and it can be addictive. he told me it’s not addictive (??) and gave me a 30 day px for valium. he wants to try to stop a cycle and try it for 30 days at five mg, then next month at 2.5 mg, etc.?

has anyone tried this? i’m thinking this is a bunch of hogwash and probably not going to do any good in the long run???

even to have a few days of non dizziness must be amazing! i have forgotten what that feels like…

— End quote

I dont think it’s hogwash - I really believe it’ll work. When I take V I feel a million times better. I’d love to take 5mg a day - GOD I’D LOVE IT!!! :twisted:

— Begin quote from "ilovesalem"

he told me it’s not addictive (??) and gave me a 30 day px for valium. he wants to try to stop a cycle and try it for 30 days at five mg, then next month at 2.5 mg, etc.?

— End quote

Who is your Dr and can we all get an appointment? :lol:

— Begin quote from "Muppo"

You are NOT a failure and this is HORRIBLE illness that requires meds with SERIOUS clout!! Got me??!!!

What you went through 18 years ago was then. It’s in the past. Done. Forget it. You are now in a whole new arena and this is not you CHOOSING to take Benzos - MAV is leaving you NO CHOICE.

— End quote

Yep, what she said. If it helps and gives you your life back then so be it

i might try the 30day val thing, you never know!! i can say though when i was in chronic pain with my back sometime ago(need surgery but didnt do it) i was taking them like candy up to 30mg or more per day for about 8 or more weeks till i had some tpye of epidural, i didnt get addicted and no withdrawls i just stopped. I will say the surgeon said may brain receptors werent working properly due to pain and there was no way i could become addicted. i think if you take them for no real reason you could become depended, but maybe our brain receptors are screwed up. Ive always had vals in my house for sciatcia 7yrs and i havent become addicted,but i dont take them daily anymore. maybe its worth a try?? i dont know if its is or maybe migraine prevention treatment is the besy way. I think even the dr still have a poor understanding of this condition and most prescriptions are guess work

Since 1992 when the MAV began full force (didn’t know at the time it was Mav)…doctors had me try many different medications…particularly anti-depressants and they did not help…the only medication that has helped me all these years is a benzo called Xanex. For a number of years (1992-2000) i was on a moderate to semi-high amount of xanex and after that i began to very gradually reduce it. I currently take 1/3 tablet a day now…sometimes 1/2 tab. On situations where i have to be a leader of a meeting that i go too or a plane ride i will take one tablet. This medication has saved me. But i have thought about trying Valium or Klonopin but i fear that if i switch to another benzo and it doesn’t work and then go back to Xanex it may or may not be as helpful.

Joe

You guys crack me up about the Valium! I told him the other reason I wasn’t sure about doing it was because I didn’t want to get dependent on it and he said, “That’s just such a misconception. Valium’s not addictive!” Ha! We will see about that! I will try this but I feel like it’s going to put me back a few steps…

— Begin quote from "Muppo"

I dont think it’s hogwash - I really believe it’ll work. When I take V I feel a million times better. I’d love to take 5mg a day - GOD I’D LOVE IT!!! :twisted:

— End quote

So V actually makes the dizziness better? I have hear so many people talk about V and I am just curious if it actually has any preventative properties.