I’m new to this forum, was diagnosed 6 months ago with VM by a Dr Seemungal. I’ve tried propanonal and topiramate with no symptom relief, so come off them now. I’m due to visit Prof Luxton’s clinic (Queen Sq,London) for a ‘second opinion’ and I’m doubting if I do in fact have MV.
It sounds from other posts on here like noone else suffers from chronic daily headaches?
I’d be really grateful to know if anyone else gets these symptoms instantly on waking up every day:
- chronic headache (which is always in my forehead but also elsewhere and isn’t just in one location and seems to move around the head)
- pain behind the eyes (like bad eye strain)
- a sudden falling/flipping over/spin sensation which makes me feel sick in the pit of my stomach
- flu/virus type symptoms.
I suffer badly every day and can’t get up until about midday when its more bearable.
I suffer from symptoms during the day too - bad headache, dizziness/motion issues - feel drunk, blurred vision (had to increase my glasses prescription just to see clearly) and reading makes me feel sick. But most days symptoms ease a fair bit as the day goes on (and it gets dark!) but then reset again the next morning.
No painkillers help so gave up using them months ago.
Does this ring bells with anyone else?
Why would I wake up and instantly get it?
Is it something about lying down?
I’ve just lost my job because I can’t work and have been mostly housebound. All pretty grim.
Hard to explain the type of spins and dizzy feeling too - its not the room that spins, it’s me, and its more like a sudden flip or fall sensation on waking and the dizzy all day long is more like motion sickness and due to my vision - nothing looks ‘solid’ or quite real…
Anyway, be really keen to hear from anyone esp. if you get headaches on waking and if anyone has any experience with Prof Luxton’s clinic and the best way to explain symptoms in the few minutes I’m presuming I get with the consultant I’d be so grateful. Am feeling so desperate with this.
If it is MV then my GP has said I can choose which drug to try next so which do I pick…
Thanks in advance!