Thanks! Any tips on recovering? I’ve watched all the vestibular exercises and not much change. Began summer of 2003, no relief yet.
Alex
You’re on to something with stress and anxiety triggering or making the symptoms worse. Happy you’ve found a solution for gastric issues that works. Funny I was in the hospital for several days for a procedure and the symptoms pretty much disappeared.Gofigure.
Thanks for responding.
Alex
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Hi Erik! I’m rarely here but noticed when I saw your post pop up. I see you’ve had some ups and downs after a lot of forward progress and I can relate. About 18 months ago I’d had such improvement that I slowly weaned off all meds apart from Botox (which I’ve had a very positive experience with).
Last summer/autumn I had a persistent cold and it worsened my migraine symptoms for several months—it was gross. But it did let up and I returned to a good baseline. Nowadays I have low-level headache (manageable) with an occasional intense breakthrough headache (typically only lasts a day), and lately some breakthrough dizziness that makes me nervous but isn’t debilitating (I think it’s more accurate to call it motion sickness, since it’s moving my head that exacerbates it). I feel like I might be a bit more susceptible to acute episodes now that I’m no longer on migraine preventatives?
So at risk of jinxing things, symptoms are manageable even when they do ramp up. It’s been important for me to accept that this is a chronic condition that may flare sometimes. If I can do that there is less chance of getting in a hole mentally and mood-wise. I know there are lots of treatments I can turn to or return to if things feel unmanageable, and that’s reassuring.
I still remember your encouraging and very practical thoughts and words when I was new to this site and to this condition, and was feeling so low. It meant a great deal and still does. Wishing you the best with your symptoms and in life generally!
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Very true for many of us it seems. When we feel normal again, its all too easy dismiss that awful period of our life as a “fluke” or something and just move on. And through no fault of our own we can find ourselves pulled back into chronic ailments. Over the last decade I have struggled with the loss of my “robustness”, but with age this loss is inevitable anyways of course (better to realize that now than at the end).
Thank you for the kind words, means a lot to me 
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I haven’t reviewed your history, but medications + time are generally the heavy hitters I’d say. I didn’t get all that much out of vestibular therapy, but others here have. Isengara’s list at the top is excellent - I also had a chronic pain psychologist for a while. If you have any pressure between the eyes / bridge of nose, then I’d recommend Cefaly device too.
Good info. I think finding the right doc and the right meds are the key. Another big issue seems to be proper sleep. I’ll keep plugging away. Your advice is really helpful. One day at a time.
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Yes, exactly what I’m dealing with now. Bad symptoms cause poor sleep. Poor sleep can cause bad symptoms. You have the right attitude, you’ll get there! And I will come around as well, just don’t know when (-: