Dr recommendation?

Hi all. I am wondering is there a list of recommended drs? I am near Portland OR, USA. If someone has a dr recommendation near there?

thanks
sarah

Sarah, I’ve seen Dr. Jeffrey Brown, an otoneurologist in Portland. He is a very thoughtful doctor who will give your case his full attention. I believe he did a fellowship in otoneurology at UCLA. (Just a heads-up that I think he’s hard of hearing as I had to repeat what I was telling him pretty frequently.)

There is a vestibular testing clinic in his same building where he refers patients. You might need a referral from another doctor before he accepts you as a client; check with his office on that.

westportlandneurology.com/index.php

It’s too bad you can no longer see Dr. Epley. He was the developer of the Epley maneuver for BPPV and was based in Portland for many years. He treated dizzy patients with all different diagnoses.

Thank you so much! I will get everything together to try and get into him. Out of curiosity, what is your story? I have been dizzy for 18 months and diagnosed with “Uncompensated Labs” I have done 8 months of VRT which has helped but still not better and deal with dizziness all day everyday, I do get headaches but I wouldn’t call them migraines, just a bad headache. I have no idea if it is MAV because I didn’t think a migraine could hold on that long and make you dizzy all day for 18 months. Thanks again :slight_smile:

— Begin quote from "KennedyLane"

Sarah, I’ve seen Dr. Jeffrey Brown, an otoneurologist in Portland. He is a very thoughtful doctor who will give your case his full attention. I believe he did a fellowship in otoneurology at UCLA. (Just a heads-up that I think he’s hard of hearing as I had to repeat what I was telling him pretty frequently.)

There is a vestibular testing clinic in his same building where he refers patients. You might need a referral from another doctor before he accepts you as a client; check with his office on that.

westportlandneurology.com/index.php

It’s too bad you can no longer see Dr. Epley. He was the developer of the Epley maneuver for BPPV and was based in Portland for many years. He treated dizzy patients with all different diagnoses.

— End quote

Sarah, I wish you luck with your appointment. I know it’s so hard to fathom that migraine could cause constant dizziness and other symptoms for so long, but that’s exactly what almost all of us on this forum have suffered with. Have you read any of the articles in the information vault? If not I highly recommend that. I especially like the presentations of Dr Nicholas Silver as I find he explains chronic migraine in a way that makes it easy to understand. Here is the link to paste into your browser: viewforum.php?f=35

Sarah, almost two years ago I did some crazy sit-ups two nights in a row, pulling up my neck with my hands pretty aggressively. The third day, I started getting really quick rotational mini-spins that would last only a split-second. These increased over the first two weeks, stopped and were replaced by feelings of disequilibrium, floor moving, tilting, pulling sensations, depersonalization, sensation of something being wrong with my eyes, nerve pain and weird pressure and sensations (burning, cold, paresthesia) along the occipital nerve pathway, stabbing ear pain, retracted ear drums, blocked/popping ear sensation, tinnitus and deep, point-tender neck pain. (All these symptoms came on gradually, for the most part…)

I got progressively worse over the next 11 months and saw experts all over the country, including Dr. Brown (Portland) and Dr. Hain (Chicago), among others. Dr. Brown said I didn’t meet the profile for MAV, but he wasn’t sure what was wrong with me. Dr. Hain thought there was a very distant possibility of MAV, but thought it more likely my problems stemmed from injuring my neck doing the sit-ups.

At the 11 month mark, a migraine neurologist I saw told me he didn’t believe in MAV and didn’t think I had migraines, which I didn’t believe either, but I do have a strong family hx. He sent me to a physical rehab doctor who specializes in spine issues. She was wonderful and told me she’s had other patients with my exact complaints whose issues resolved when she injected the facet joints in the upper neck and blocked the 3rd occipital nerve that runs through C2. I had this done, and a few weeks after this procedure, everything improved until I was functioning about 75-80% back to normal.

This lasted three months, and then everything came back after doing activities that had my neck forward and down for extended periods of time. I also had some airline flights during this week and experienced ear pain upon descent, so I can’t discount that the change in pressure in my eustachian tube played some role in the return of my symptoms. I believe it was a combination of increased inflammation in my upper neck (from strange neck positions) and the flight that stirred everything up again.

Anyway, I’ve returned for more neck injections over the past year when the symptoms came back (always some combination of a cold, flying, holding neck in a forward/down position for extended periods of time, falling down hard while being pulled forward by the dog leash resulting in the awful neck pain) and have had excellent results each time.

As an aside, I’ve noted that the eye on my more symptomatic ear side has a pupil that dilates in dim light much more than the other. I suspect this is what makes my eyes feel weird when I’m at my worst. I don’t have any visual auras or other vision issues, and I feel absolutely the best when I’m outside or in large buildings with walls far-away. Crowds of people, fluorescent lights and noises have no effect on me. I feel much better in a moving vehicle and much worse for a time when I stop. I’ve also recently been diagnosed with obstructive sleep apnea and have been using a CPAP machine at night for the past 2 1/2 weeks. I believe the OSA plays some role in my issues, but it’s hard to separate exact cause and effect. Everything seems to be a combination of ingredients to a perfect storm…

Since my last injection about six weeks ago, I’ve had many days that I’ve felt almost 95% back to normal. However, I noted recently (after sleeping with my neck propped-up with an extra pillow) strong pain/pressure again above my left ear. A couple days later I developed a slight cold and also spent some time scrubbing showers with my head in that forward/down position. Will I ever learn?! The dizziness feels like it’s trying to make a come-back, and I’m praying the ibuprofen I’ve been popping will help with any inflammation.

Although I don’t believe I have true MAV, I spend time on this board since my symptoms are much the same as others on this forum. I suspect that while the exact etiology of my problems may be different, the pathway is very similar to vertigo from genetic migraines. Also, as you’ll see, the folks here are just downright nice, supportive and have can relate to how vestibular issues can adversely impact one’s life.

Hi Sarah–I agree with KennedyLane that Dr. Brown is probably the best dizziness specialist in Portland (although it’s been more than a decade since I saw him or any other dizziness specialist). I asked him specifically a couple of times about migraine as a possible cause of my dizziness, but he brushed off that idea, even though I’m clearly a migraineur. However, he couldn’t give me any other explanation for my dizziness and other symptoms. Since 1999 I’ve been dizzy (or, more correctly, dizziER) and had other strange symptoms, seen a lot of doctors with no explanation or resolution. Let’s not forget the years and years of fear (when he originally told me MS), confusion, dismissal, and extreme frustration from being told I’m just “overreacting” and too “anxious” about my symptoms–as if that were the CAUSE of my symptoms, which have never been really fully and thoughtfully investigated.

But then after all these years … just last fall I talked to my (new) PCP about my belief that I have VM, and she seemed quite knowledgeable and suggested a trial of nortriptyline. To my astonishment, it has WORKED! to decrease my dizziness and motion sensitivity VERY significantly!

So, if you haven’t seen a good dizziness specialist yet, go for it, and yes I’d recommend Dr. Brown, but be prepared for the fact that you might have to eventually figure things out yourself and just find a PCP who’s willing to work with you on trials.

And yes, it CAN be migraine even if it’s daily dizziness, not coming only in big attacks. BTW I had very frequent (relatively mild) headaches as a teenager but NEVER suspected they were migraines until I got a visual aura (no headache) at age 42. This is a not unusual pattern–migraine manifestations change over your lifetime.

Best of luck,

Nancy