# Drs in Boston/Massachusetts who will thoroughly test for Lyme

**URL:** <https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670>\
**Category:** Physicians, Specialists, Clinics & Visits 👨‍⚕️👩‍⚕️\
**Created:** [June 13, 2023, 8:28pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670 "2023-06-13T20:28:34Z")\
**Posts on this page:** 12\
**Page:** 1

<div class="post-metadata">

**Author:** ![annae00](https://mvertigo.org/letter_avatar_proxy/v4/letter/a/f04885/32.png) [@annae00](https://mvertigo.org/u/annae00)\
**Post date:** [June 13, 2023, 8:28pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/1 "2023-06-13T20:28:35Z")

</div>

Hello,  
Does anyone know any Drs in Boston (or the general area) who will test for Lyme and have seen patients with seeming MAV who have had Lyme?

---

<div class="post-metadata">

**Author:** ![sheepdog\_lord](https://mvertigo.org/letter_avatar_proxy/v4/letter/s/bc79bd/32.png) [@sheepdog\_lord](https://mvertigo.org/u/sheepdog_lord)\
**Post date:** [June 13, 2023, 10:46pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/2 "2023-06-13T22:46:03Z")

</div>

what do you mean “thoroughly test” for Lyme? your GP can just order a blood test for Lyme disease titers and you should be good to go

---

<div class="post-metadata">

**Author:** ![turnitaround](https://mvertigo.org/user_avatar/mvertigo.org/turnitaround/32/4441_2.png) [@turnitaround](https://mvertigo.org/u/turnitaround)\
**Post date:** [June 14, 2023, 11:16am UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/3 "2023-06-14T11:16:13Z")

</div>

I think it goes without saying “Lyme Disease” as an explanation for a MAV-like constellation of symptoms is fairly controversial.

---

<div class="post-metadata">

**Author:** ![sheepdog\_lord](https://mvertigo.org/letter_avatar_proxy/v4/letter/s/bc79bd/32.png) [@sheepdog\_lord](https://mvertigo.org/u/sheepdog_lord)\
**Post date:** [June 14, 2023, 3:16pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/4 "2023-06-14T15:16:34Z")

</div>

“Controversial” is the best and most delicate way to put it

---

<div class="post-metadata">

**Author:** ![annae00](https://mvertigo.org/letter_avatar_proxy/v4/letter/a/f04885/32.png) [@annae00](https://mvertigo.org/u/annae00)\
**Post date:** [June 14, 2023, 3:17pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/5 "2023-06-14T15:17:03Z")

</div>

I definitely agree, but I’ve seen people on here with similar symptoms who had gotten treatment for lyme disease and recovered so I feel like it’s worth a shot to just get tested.

---

<div class="post-metadata">

**Author:** ![turnitaround](https://mvertigo.org/user_avatar/mvertigo.org/turnitaround/32/4441_2.png) [@turnitaround](https://mvertigo.org/u/turnitaround)\
**Post date:** [June 14, 2023, 3:18pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/6 "2023-06-14T15:18:04Z")

</div>

I think you also have to consider that most sufferers stabilise and get better spontaneously … but sure … explore what you need to … just don’t do anything that isn’t conservative!

---

<div class="post-metadata">

**Author:** ![sheepdog\_lord](https://mvertigo.org/letter_avatar_proxy/v4/letter/s/bc79bd/32.png) [@sheepdog\_lord](https://mvertigo.org/u/sheepdog_lord)\
**Post date:** [June 14, 2023, 3:19pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/7 "2023-06-14T15:19:31Z")

</div>

the only thing that can happen if you get “diagnosed” with chronic Lyme is getting put on long-term or IV antibiotics that you don’t actually need and haven’t been proven to give any benefit to patients in long-term clinical trials.

many antibiotics can make vestibular symptoms worse too…it just isn’t a road i would go down. the risk/reward balance isn’t there

---

<div class="post-metadata">

**Author:** ![annae00](https://mvertigo.org/letter_avatar_proxy/v4/letter/a/f04885/32.png) [@annae00](https://mvertigo.org/u/annae00)\
**Post date:** [June 14, 2023, 3:27pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/8 "2023-06-14T15:27:14Z")

</div>

Isn’t there no data from clinical trials that all the ‘migraine’ medications VM patients are given also significantly help? Please correct me if I’m wrong I just can’t find the data. I understand your guys’s points though and I have the same concerns.

---

<div class="post-metadata">

**Author:** ![sheepdog\_lord](https://mvertigo.org/letter_avatar_proxy/v4/letter/s/bc79bd/32.png) [@sheepdog\_lord](https://mvertigo.org/u/sheepdog_lord)\
**Post date:** [June 14, 2023, 3:46pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/9 "2023-06-14T15:46:20Z")

</div>

a lot of the literature for using migraine medication in VM is from retrospective analysis, meaning that the researchers are retroactively looking at outcomes from patients prescribed these medications in clinical management. there are very few randomized clinical trials for VM.

why is this the case? clinical trials are expensive and have to be funded by a major pharma sponsor – repurposed drugs will not make pharma companies any money so its really not worth funding a full fledged randomized clinical trial. also, retrospective analysis are still valuable for a patient-oriented perspective. if patients report significant improvement in their symptoms after being prescribed these medications then thats almost as good as a clinical trial but not quite.

the difference is that there _has_ been clinical trials for the treatment of the syndrome otherwise known as “chronic lyme” and there was no benefit found for the patients that were put on long-term antibiotics. in addition “chronic lyme” is not really an accepted disease because the symptomatology is too non-specific. pretty much everyone alive on this earth has had symptoms of chronic lyme disease: fatigue, random pains, brain fog, etc – these are common symptoms and dont point specifically towards any one diagnosis so its not useful and can actually be harmful to patients to assign this diagnosis, hence why the medical community does not do it.

edit: _have_ – excuse my poor American grammar

---

<div class="post-metadata">

**Author:** ![turnitaround](https://mvertigo.org/user_avatar/mvertigo.org/turnitaround/32/4441_2.png) [@turnitaround](https://mvertigo.org/u/turnitaround)\
**Post date:** [June 14, 2023, 4:24pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/10 "2023-06-14T16:24:41Z")

</div>

I struggle to conceive of a chronic infection that the body can’t naturally resolve. Infections are invariably acute no?

---

<div class="post-metadata">

**Author:** ![sheepdog\_lord](https://mvertigo.org/letter_avatar_proxy/v4/letter/s/bc79bd/32.png) [@sheepdog\_lord](https://mvertigo.org/u/sheepdog_lord)\
**Post date:** [June 14, 2023, 6:13pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/11 "2023-06-14T18:13:41Z")

</div>

unless you’re immunocompromised but you’d have bigger more evident issues if that were the case

---

<div class="post-metadata">

**Author:** ![annae00](https://mvertigo.org/letter_avatar_proxy/v4/letter/a/f04885/32.png) [@annae00](https://mvertigo.org/u/annae00)\
**Post date:** [June 15, 2023, 1:50pm UTC](https://mvertigo.org/t/drs-in-boston-massachusetts-who-will-thoroughly-test-for-lyme/22670/12 "2023-06-15T13:50:04Z")

</div>

thank you, that makes a lot of sense.
