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Emgality for Vestibular Migraine

Hey everyone,

I’ve noticed that there so far haven’t been any discussions about the new anti-CGRP medication Emgality. Has anyone been prescribed this for vestibular migraine? Has it worked for vertigo and headaches? My doctor gave me a prescription along with a free sample of the first loading dose, but I haven’t injected it yet as I need to find out whether my insurance will cover the rest of the doses for the next year.

I’m a bit concerned about a possible allergic reaction, as people have reported injection-site reactions especially for Emgality. I also would like to know whether there is a possibility it would help my vertigo, as I have only really seen discussions of it helping with classic migraines. Admittedly, the actual headache part of my migraines are the worst for me currently, as I get about 4 bad migraines a week and almost constantly have a headache. But I would like to know if it’s possible that my vertigo will also improve.

Thanks!

Emre

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Hi. Emgality eh, that’s the third new injectable to come on stream in probably less than twelve months. In fact the second one was only made available in the UK last July, and an announcement about Emgality being available to patient fee paying patients, in Harley Syreet, London I’ve seen was dated last November less than six months back, None are yet available through the UK NHS as far as I’m aware until July 2019. Trials will then be carried out before injectables are available generally so it’s all very early days for injectables, Medical trials have been carried out in other countries, US mainly I believe, but only on episodic and chronic migraine (pain = headache) type not for VM/MAV so there’s unlikely to be many people here, or indeed anywhere, who can answer your question as to whether Emgality will work on vertigo. I guess the Jury’s still out on that one. Helen

On another site, I’ve seen two positive reviews for similar class of drug for Vestibular migraine symptoms, including dizziness. My thought on this is:
if Dr’s want to call our symptoms migraine and say any preventative for normal migraine will work, then this class should as well. Or perhaps we’ve been misdiagnosed?

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True in theory. In practice I dont find it hard to believe my attacks are migrainous with vertigo instead of a headache. Good enough theory for me until somebody finds a root cause(s) for the migraine cos it must come from somewhere. Apparently any preventative only works for 50% of those taking it anyway so all these new injectables widen possible options for those that can afford them and indeed can get hold of them. They aren’t yet in general use in UK but I suppose time will come. Helen

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Well, two weeks in at my starter dose of Emgality and it seems to be a heavy hitter. I can tell it will be as effective as my Ami and Cefaly, maybe even more. If anyone is on the fence to try it, I would recommend it. I haven’t noticed any side effects other the slight pain in my $#% cheek when I injected it.

The main improvement is that my daily head pressure is basically gone, and yes this also means my dizzies are basically gone. At night I still feel a bit off balance, but that is about it as far as dizzies go. I haven’t used a triptan in several weeks now. I’m glad now I didn’t settle for 90% recovered, hopefully things continue to go well as I approach 100%, we’ll see.

Oh and sleep has finally improved so much, that’s really the best part I think.

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Hi Erik,

Thanks for the update. Emgality is something in my future arsenal.

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Super exciting news! Thanks for the first hand feedback and long may the improvement continue!

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Hi,
I got a free sample of ajovy last month and this month, because my insurance would not pay for ajovy, I gave myself the first shot of emgality this past Sunday. I had migraines first and developed vertigo along with them. I also take vanlafaxine and verapamil. I had 1 mild vertigo event after the ajovy. I will keep posting on this as time goes on.

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I’ve been prescribed Emgality – I just picked it up today actually and will try it this week when my tinnitus returns to baseline (it’s been nearly 2 weeks from my last trial of Amitriptyline, which spiked my tinnitus terribly).

I’ll let you know how it goes.

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Sounds good, hoping you have good luck with it! Do you inject that once monthly? And yes, amitriptyline made my tinnitus horrible so I know what you mean!

how is it going now? I am glad you keep searching for answers… I kinda have settled for the 85%, sometimes 90% because I have zero steam to go after more treatments.

It’s going really well, I’m about to inject my 3rd dose (starting the 3rd month) and I just have a tiny head pressure / off-balance left that’s very minor. So yeah basically 100%. Haven’t used a triptan in about a month. I haven’t noticed a side effect with Emgality, which is great. Don’t settle for 85%. :grinning:

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