Hope that you are all having some success with your treatments and aren’t feeling too bad today?
I am just wondering what connection Epilepsy might have with MAV? Is it not true that both conditions basically amount to a number of nueronal pathways firing uncontrollably? I ask as my mother had Gran Mal epilepsy and had regular fit’s and seizures. I do not have epilepsy, but perhaps there is a link there? This might also explain why anticonvulsants can sometimes work with MAV.
The link is without a doubt there. I don’t have any papers on it in memory (nor the time to find them at the moment) but it’s pretty well-documented, even though I don’t know if “they” know HOW they are related.
Most epilepsy meds appear to help prevent migraines as well, and as you say, it appears both are related to neurons going wild.
I thought there might possibly be some link there. I think the verapamil isn’t doing it for me. I haven’t had any side effects from it (not even the constipation that they say is quite common) but it hasn’t improved my symptoms at all either, so I may now wean myself off it and try something else.
Shame, I had great hopes for it as cinnarizine does take the edge of the dizziness when it’s really bad so I thought verapamil also being a calcium channel blocker might be the way forward.
Perhaps there is another calcium channel blocker that I could give a try. Something more similar, but more potent than cinnarizine?