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Exercise, Deconditioning etc

Continuing the discussion from Wow, lost for so many years and today I´ve found this website:

Hi Nathan. In the broadest terms I have agree with your summary of how much exercise helps with recovery and I’d certainly vote your post Post of The Month if that was necessary however I cannot agree with your suggestion we should each become a ‘fitness freak’. Next to perimenopausal women and ‘ladies of a Certain Age’ I think you’ll find the next largest group of people on here who have developed MAV are ‘personal trainers’. So being the cautious person I am I’m all for moderation in all things and that includes exercise. Agreed, MAV Comes in a wide variety of guises some of which severely inhibit people’s ability to walk yet alone run for long periods which results in decompensation and deconditioning as a result of which a short walk outside can be considered a triumph. In such cases keeping on the move and being as active as possible without provoking too much discomfort is as much as can be expected and as they say ‘Every little helps’. Everybody needs to realise and appreciate their own limits which hopefully will expand as time goes on with the aid of diet, lifestyle changes and medication. Let those who have always been involved in sports carry on if and where they can but personally I know what pushing through does. It results in falling over, often big time. It’s up to every one to each progress at their own level. After all we have to walk before we can run. Agreed. Give exercise or ‘increased activity’ a greater role and reduce screen time. Great advice but most of us need to take exercise real steady. Helen


I agree. I like exercise. I feel better when I do, if I’m moderate and careful to know my limits. Games like basketball and tennis or perilous activities like rock climbing (even at the gym with a harness) are way more than this brain can handle. I work out in hour long group kickboxing classes, but I pay attention to where I am physically. My VRT said never more than 20% worse on any metric. When I exceed that, I pay immediately and for days.


Rock climbing? Hee hee. I’d like to be able to get up my stepladder to clean off the top frame of my (high) kitchen windows. Strangely enough when I was constant 24/7 dizzy I could do it. It’s only since that stopped and I’m just intermittently ‘wobbly’ I cannot. Same with step-ups. Though, On a good day I can do those easily, on an off day two step ups and my balance’s a lost soul. Helen

I’ve been thinking a lot lately about ‘compensation’ ‘deconditioning’ etc. It comes back to mind every time I read another post where people talk about having had success with a preventative and are feeling better but that they are ‘still dizzy’ a lot or some of the time. Do some drugs remove other symptoms but not others? leave the ‘imbalance’ ‘behind? Do they all? I wonder what ‘what’s left’ really is. Exactly what are we waiting for? I don’t know the answer, just ask the question. Is this dizziness the result of ‘deconditioning’, ‘lack of compensation’, or some sort of ataxia. Could it simply be the fact most preventatives don’t/can’t address the vestibular issues of MAV. Why hasn’t it simply gone away. Has the cycle not been broken completely or for a sufficiently long time period. How come can it and does hang on.

For a long time I’ve seen many flaws in the ‘compensation’ argument when it comes to an unstable condition such as MAV. After all where’s the stable baseline for it to return. There just isn’t one. But ‘deconditioning’ is another matter. It comes down to the old adage “use it or lose it” and that can apply to things as simple as getting dressed it seems. It’s much question of the less one does, the less one becomes able to do. Happens after hospitalisation and chronic illness of any kind. Constant Inactivity causes a downward spiral. The worse you are, the worse it becomes.

Taking myself as an example and researching as I do since I realised ‘deconditioning’ is now a recognised diagnosis, something I only recently discovered, all manner of other contributory factors have been jumping out at me. Reading about various ways to improve I noticed an article advising people to walk outside regularly and properly. VRT told me better to walk properly with a stick than struggle to walk anyhow without. I read of the need to walk upright with relaxed neck and shoulders. Natural to most folk but not MAVers always or not this one anyway. All this correct posture required presumably connected to correct messages on balance reaching the brain I assume. Elsewhere I read that the habit of always looking forwards and walking to a fixed point outside (another VRT aid to keeping upright I was always given) rather than turning the head can adversely affect the VOR. Just two personal maladjustments which I feel have contributed towards my own deconditioning during five years of chronic MAV. If I could thoroughly correct those maybe that residual imbalance would finally depart. Helen


I was able to run a pretty fast mile before this whole MAV thing started. I’ve tried to start training on and off with MAV. Each time I do I start to feel good about it for a couple weeks and then I just keep crashing into worse head pressure and rocking dizziness. I’m doing a lot more Tai Chi these days and walking, also yard work like gathering and chopping wood.


I think you could get some of the distance and some of the speed back but whatever your personal former glory was is in the past. Which for me is kind of depressing. It’s not so much knowing I peaked already. It’s more looking back at how low that peak was to begin with. :musical_note: waa waa waaaaa Nobody ever confused me with an Amazonian Wonder Woman.

I’m trying to decide if I’m capable of doing my kickboxing class today. I think maybe I’m too sore for anger therapy today. Yesterday I worked the punching bag for about 1/2 hour while waiting for an hour long hip hop dancing class at the Y. I literally danced the line of my thresholds. When I started to get annoyingly dizzy, I backed off or out and then came back. MAV is gloriously silent on the subject this morning, so success! The rest of me wants to know what in God’s name I was thinking when I took this 46-year old broken body and attempted to make it perform hip hop moves. The Frankenstein’s monster look I rock while getting stiff, misaligned joints and two left feet to try whatever that standing sex move is notwithstanding. Really racy stuff for an organization with the word Christian right in the name. Crazy fun though. I could actually track the path of the bones in my hips and pelvis as they dislocated. Looks like I’m giving my chiropractor another installment on his student loan payments. There’s another class tomorrow!


Addendum: my chiropractor suggested I take a good hard look at what the broken and old are doing for workouts at the gym and maybe take up their habits. Kickboxing and hip hop weren’t in that list. He noted how impressively stubborn I am. Then said have fun, I’ll see you next week because we both know you’re going to keep on having fun. For today, though, ice packs.


they do swimming which you do too ! swimming the exercise nirvana for all folks suffering from bio-mechanical ailments !

My chiropractor said I could walk in the pool. So that’s just what I did. :slightly_smiling_face:

You can even run in the pool with one of these:

Just don’t end up like this…
Cinder Block


I swam 1.5k yesterday which is less than I usually do but all MAV would put up with. Pushing boundaries while respecting hard limitations is delicate business.