I have had MAV (or I guess vestibular migraines would be the new name) for around three years now and it began with a bout that lasted about two and a half weeks of the sort where the floor is unstable and one foot kept dropping every few seconds suddenly. Anyway once that passed I got a increase in motion sensitivity, internal vertigo bouts, swaying bouts (most frequent I would say), drop bouts of the feeling one foot or both just fall suddenly, laying down I would get the feeling of falling repeatedly often at night, during the night, or morning somethings with the spinning sensation, and external vertigo especially if I move too quickly. I might have missed some… but lots of vertigo type sensations, lots triggered by motion as well.
And then on Sept 30 I had a massive drop attack where if felt like the floor on one side was just not there at all… so I fell, thankfully my bookcase was there to fall into. Got my heart racing since it was such a sudden drop. After that the floor felt all spongy but I assumed it would be like most and be gone the next day or mostly, since most last a day or two max. But it didn’t. The next day the floor felt unstable on both sides. Every step it would feel like I was sinking a bit. The more I walked around or stood the worse it got. When seated it felt like the chair was dropping a bit in a pulsing pattern. And it gets worse as the day goes one. And it has not stopped since. So this is the longest bout I have ever had going on now three and a half weeks.
I really want it to end because it is disturbing it is lasting this long. I can’t think straight or focus well. My eyes are all wonky. I have persistent migraine auras as well and combined with the vertigo it is not helping one bit.
Should someone be concerned about a change in pattern like this? :?:
hiya, not an expert, but as i understand it, depending on the triggers will depend on how affected you are so if you have recently experienced alot of your triggers in one go, you are more likely to experience greater problems.
Are you able to pay to see a neuro privately, if only to get treatment started?
Are you on the migrane diet?
— Begin quote from ____
hiya, not an expert, but as i understand it, depending on the triggers will depend on how affected you are so if you have recently experienced alot of your triggers in one go, you are more likely to experience greater problems.
Are you able to pay to see a neuro privately, if only to get treatment started?
Are you on the migrane diet?
— End quote
There has been no triggers to speak of. I have been off work on a long term leave of absence and really not leaving the house much, so no motion triggers which was a real problem commuting to work certainly. In fact the irregular pattern doesn’t just stop with the abrupt increase in vertigo but also my migraine pattern. Usually I have chronic daily migraines and when this all began suddenly the intensity and frequency of the migraines themselves abruptly diminished through no change on my part and certainly no change in triggers. I had a few migraine free days which is frankly astonishing and awesome. A few low pain days. More than a few days where the migraines were triggered quite late in the day. But still unable to function with the vertigo. Sort of a lose lose situation. Just a complete change in pattern.
I live in Canada so I am on a wait list to see a neuro and that is just the way it is. I cannot see one privately. It should be by the end of the year at the latest I am told.
As for a migraine diet I do the usual in avoiding trigger foods but I have found none of those to be anything that trigger migraines per sa, just avoid them anyway. I’m not allergic to gluten as I have been tested.
The only thing I can think of is that I have been trying depo shots to treat menstrual migraines and this began as it was wearing off… so at a time when I might expect a worsening of migraines. The progesterone treatment has eliminated the horrific menstrual migraines… but it has also changed the pattern of my migraines, due to the fact it is not quite perfect so it is erratic treatment at best and erratic is not great when it comes to that type of migraine. I believe it has affected my persistent migraine auras as well which perhaps is not great. So perhaps it is affecting the vertigo as well. It is damned difficult to treat this type of migraine but if messing around with my hormones is making the MAV more erratic this would be a big problem.