I suffered my first migraine for 6 years yesterday. I was actually out cycling
and suddenly my vision was disturbed, the same old sensation I used to get all
those years back where I can not see half of my field of vision.
Luckily I was near a friends house and they were able t give me a lift home,
otherwise I would have been in worse trouble.
I had the typical migraine, visual disturbances, terrible sickness and a pain I
guess is possibly similar to childbirth.
The strange thing is, for the past 10 days I have been taking sibelium (
flunarizine ) which is actuallya migraine preventative drug of all things.
Is it simply coincidence that I have had the first attack in such a long time
and at the same time been taking this medication I wonder.
I wouldn’t have questioned it otherwise, as I had not fuelled my body enough,
and I was dehydrated also which could easily explain the attack.
I also wonder if this now conclusevly suggests I have MAV and not MdDS?
Hey Richy. I don’t know that it “proves” anything, but I do think that it continues to be suspicious. Your migraine history already made it suspicious and this makes it moreso.
As for having a migraine while on a preventative, I don’t think that is that uncommon. I actually had some of my worst migraine headache pain ever while on a high dose of Nortriptyline. I think sometimes the mgiraine preventatives can sometimes CAUSE migraines as well. I know, that seems bizarre, but migranes are a bizarre disorder. Since the migraine preventatives are screwing with your brain, and your brain is already sensitive, messing around with things can sometimes actually cause a migraine even as you are trying to prevent them. I know that isn’t a very scientific answer, but that is the best I can do to explain it. I wouldn’t worry too much about just one because as you said you were dehydtrated and there could have been other factors involved, but if you start consistently getting them then clearly the sibelium isn’t working for you.
I know your docs don’t think your problems are migraine related, and maybe they aren’t. But I’m still suspicious. Your migraine history and otherwise good health just screams MAV to my admittedly un-trained eye. Hopefully your docs will continue to treat you for migraines while they look for other solutions, though maybe the sibelium isn’t the best bet if it keeps giving you problems.
Fully agree with you in the medication part. I spoke with the doctors and they were convinced the medication couldn’t be the cause but if you are affecting something then it’s possible it could do the opposite I’m sure!
I’m not best pleased with the docs here as late, I’m starting to feel like a burden to them, even though I’m paying them big money every time I see them… I wish I just had a decent doctor that I could form an understanding with…
Although I’ve cinsidered flying back to see dr Surenthiran a few times, I haven’t gone through with it because I feel he will say its mav without all things considered. Im starting to get the impression he is the MAV guy and diagnoses nothing else, although I am sure there is ore to his job than that, or at least I hope so.
Just feeling thoroughly frustrated lately, I want my life back, I don’t want the horizon to look like its moving up and down, and I don’t want the earth and sky to seem like a different world that I am somehow swamped in. I just want to be me
Yeah, I went to a migraine guy, he diagnosed me with migraine, treated me for migraine, and I got better. I have no idea if I had NOT had a migraine problem if he would have correctly diagnosed me, or if he would have just diagnosed me with migraine anyway. Because, as you said, he was a migraine guy. That is what he does. I’d like to think he would have correctly diagnosed me regardless because I think he’s a really good doc, but you never know.
In my case, the migraine diagnosis turned out to be right. In your case it obviously might not be. Are your docs actively working on other theories?
I agree that a specialist will diagnose you based on his own background and experience. For example, I went to a dentist who specializes in head pain and TMJ. He told me he was 70-80% sure my dizziness problems stemmed from me grinding my teeth at night. I went to a neurosurgeon who told me my bilateral vascular loops might be causing my problems…
It seems if you see three specialists you could get three different diagnoses…
RIch, I just noticed something you said. Do you actually have a visual perception of the motion you are feeling? Meaning are you actually SEEING the motion you are feeling? If so, that is different than what I experienced. The motion I felt was always entirely in my head. My eyes never saw it and in fact would always tell me that nothing was moving. So if you are actually SEEING motion and not just feeling it, that would seem to be significant to me.
Looks like you are definitely a migraineur. You may have something else as well, or it could all be migraine. If I were you I’d hit the biggest target (migraine) first before chasing other rabbits down holes.
RIch, I just noticed something you said. Do you actually have a visual perception of the motion you are feeling? Meaning are you actually SEEING the motion you are feeling? If so, that is different than what I experienced. The motion I felt was always entirely in my head. My eyes never saw it and in fact would always tell me that nothing was moving. So if you are actually SEEING motion and not just feeling it, that would seem to be significant to me.
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Hi Jamie,
Yes i do get the visual sensation that things are moving in my vision and peripheral vision. Its hard to describe exactly what its like, but if I didn’t know better i’d think I was on LSD or something
