— Begin quote from “emmasaga”
I was on Cipramil 10 years ago for depression and it helped, and it was easy to get off. Dr. Hain (my doctor) said that there has not been any proof that Cipramil helps migraine…I wish there was…
— End quote
Welcome to the board Emma! Really glad you’re here. And also great that you saw one of the best gurus you could possibly have seen for this migraine junk.
I wanted to add that even though Hain said there was no evidence for Cipramil and migraine per se (he’s absolutely right - there are few studies that have examined SSRIs and migraine beyond Zoloft and Prozac), it does appear that the SSRIs do work for this in some cases for MAV (but like all these meds this particular one may or may not work for you) at least in removing dizziness from the equation. I have seen a number of people recover quite well with the aid of SSRIs – or at least partially. As it turns out I also took Cipramil and it took me to feeling about 95% and kept me there for most of the 4 years I was on it although, not surprisingly, it did not clean up the headache component of this for me. I know another girl here in Sydney who also had VN and was made well on Cipramil as well, though I have no idea what happened to her in the end. I think she had MAV actually because she would always complain about sudden blurry vision. I didn’t know what MAV was then though. There’s a few other people on the board here who have had some success with Prozac and Zoloft.
Anyway, definitely follow what Hain has said of course and give Effexor a fair go. It’s got the best proven track record in this class of meds. Just know that if you rule it out after a few months, Cipramil could be worth another go and maybe with the addition of second agent such as Verapamil. Of course consult Dr Hain with any of this first. If I can’t handle the Effexor I will probably go back to either Cipramil or Lexapro myself (lex uses the exact same active molecue but in a cleaner mixture).
I didn’t realise you’d had VN first (as I did … as did Violet from the healthboards, Hannah who is here and also Tesss). It’s amazing how frequently this appears to happen. I would love to see this investigated by one of the groups in the US. My own hypothesis on this is (actually Dr Rosalyn Davies in London mentioned this to Hannah) that even if someone has the smallest predisposition to migraine, a bout of VN causes enough trauma to the central nervous system to kick off MAV. Those without a “migraine brain” generally recover from VN in the textbook 6–12 week trajectory as long as there aren’t eye-sight complications … or they may need VRT to get to the finish line.
Lastly, I’m not surprised that singing, playing your guitar and piano is difficult seeing that you had VN. You will be fine again but will need to compensate for this. What has to happen first though is control of the migraine. Once migraine stops interfering, your brain will sort out the problems associated with guitar playing. I still have problems with guitar because I have not actively played daily to fully compensate. In addition I still have not snuffed out the recent migraine activity. There was a guy on the Healthboards (named “Comeandrelax”) who was a lead guitar player in a band. He got hit with VN and developed MAV. It took him a while but he did fully recover his ability to play guitar and sing without feeling dizzy even though he hadn’t cleaned up the migraine completely. He simply wouldn’t give up and just kept playing daily until it stopped messing with him.
Finally, this is what Dr Rauch (another great neurotologist in the US) had to say about migraine:
— Begin quote from ____
Even if migraine is not the primary cause of some of our patients symptoms, it causes intensification of symptoms to the point that the migraine inhibits treatment of the primary problem. Migrainuers are the only patients who get worse in vestibular rehab PT. I consider this diagnostic of migraine: If I see a patient who tried VPT but quit after 1 or 2 sessions I know they’re a migraineur. The migraine trumps every other dizzy diagnosis. Until I control the migraine, I really cannot treat the uncompensated vestibular neuritis, intractable BPPV, or Meniere’s syndrome.
— End quote
See the following clip from Dr Rauch on MAV:
masseyeandear.org/about-us/v … dizziness/
Keep us up to date on how Effexor is going for you!
Best … Scott 8)