First acute balance issues: Sept 2020
Number & duration of acute phase(s): 24/7 since then
Any suspicious physical event/trauma leading up to dizziness: Had a bout of what I assumed was sinusitis (although my nose was never blocked - just my ears) that improved slightly but basically never went away.
Start of chronic phase: Sept 2020
Age at chronic onset: 56
Number & type of consultants seen to date: Eye hospital ophthalmologist re visual disturbance (eye exam fine except small recent haemorrhage), ENT consultant and lastly Neurology consultant.
Diagnoses received (one I’m “running with” first): Persistent Vertiginous Migraine
Medications used successfully for MAV: Awaiting amitriptyline prescription from GP
Failed medications for MAV:
Non-pharmalogical treatment tried which helped: Not sure this counts but I have bought a (folding) hiking pole which is a godsend for negotiating kerbs when crossing the road. Also for uneven surfaces.
Non-pharmalogical treatment tried which didn’t seem to help :
Dietary triggers identified: None
Any hearing loss in either ear: Slight in both plus difficulty identifying background noises.
Persistent or intermittent tinnitus and character: Have a loud humming in both ears but only really notice it when there’s no other sounds.
Other chronic conditions I’m suffering from: suffered anxiety and depression after major family event. Low thyroxine levels.
Medication I’m taking for other conditions: Fluoxetine Levothyroxine
Any personal history of migraines: I remember having headaches as a child which my granny called “sick headaches”. Brief period of ‘proper’ migraines in late teens/early twenties. Had an episode of neuralgia on the top of my head (prescribed gabapentin) Lasted a couple of weeks. My Neurologist says this was actually a migraine.
Any family history of migraines: I think my dad had them when he was younger. My daughter has had them (?hormone related). My mother had trigeminal neuralgia.
Any history of ear problems: I always remember having ear ache as a child. Had peritonsillar abscesses as a teen with associated sore ears. Had tonsillectomy. Had acute labyrinthitis in my late 20s.
How did friends, family, and doctors react to your symptoms?: All very supportive.
(Your current state)
What’s Gone: (what symptoms you had but no longer get) All still happening.
What’s Ongoing: (what symptoms you still get) Earache, headache, head pains (all mostly on the right side), nausea, dizziness particularly when moving head, unsteady, fatigue, brain fog, eyeballs feel like they’re dancing about.
My Worse Day Now: (description of the worst day you get now) When I have all the symptoms at the same time.
Update - Diagnosed Jan 2021 with Persistent Vertiginous Migraine by the excellent Oxford neurologist Dr Lennox. Migraine is one of his specialties.
Hello! I may well not have Vestibular Migraine but I am here to describe my situation in the hope you lovely people will be able to give opinions on whether you think I might have, or possible alternative diagnoses. Apologies of I’ve missed something really obvious.
I had what I assumed was sinusitis - nose clear but right ear blocked, earache and upper teeth tingling on right particularly; pains in right side of head); feeling dizzy and nauseous (lost 1/2 stone - the only upside!); and my thinking is not at all what it was (brain fog??) After 3 wks GP recommended Beconase. Another 3 weeks I still had the dizziness, nausea and head pains. Also getting occasional vision blurring when scrolling on my phone. Visit to GP and standing on one leg with eyes closed showed I had balance problems.
So I’m waiting now for another month or so at which point my GP hopefully will refer me to ENT. I have these symptoms 24/7 with some let up in the evening. I’ve had blood tests to exclude infections, hormonal problems, Covid-19 antibodies etc and have no signs of cerebellar problems.
Thank you in advance