# Has anyone been diagnosed with MDDS? Sounds more like me **URL:** \ **Category:** VM/MAV\ **Tags:** mdds, migraine, mav, vestibular-migraine, meditation\ **Created:** [May 15, 2014, 11:37am UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865 "2014-05-15T11:37:00Z")\ **Posts on this page:** 6\ **Page:** 1
**Author:** ![NickWatkins](https://mvertigo.org/letter_avatar_proxy/v4/letter/n/b19c9b/32.png) [@NickWatkins](https://mvertigo.org/u/NickWatkins)\ **Post date:** [May 15, 2014, 11:37am UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865/1 "2014-05-15T11:37:00Z")
I was diagnosed with MAV in January and have been struggling to combat that since then. I didn’t even know of the existence of MDDS until looking through these forums and seeing it mentioned. Surprisingly, this sounds _exactly_ like me - the constant, relentless, 24/7 swaying/rockiness/false sense of movement, whether I’m sitting, standing, or laying down. The telltale sign of MDDS seems to be that sufferers feel better when they’re in a moving car or any vehicle, and this seems to be MY case. I don’t feel one hundred percent better, but I feel better, certainly. So I’m just wondering, could it still be MAV that I have with all the symptoms I just described, or does it sound more like I’m an MDDS case? Is anyone here a diagnosed sufferer of MDDS? Also, all the research I’ve seen from Hain’s website and others indicates that sufferers of MDDS almost always got it after a prolonged cruise out at sea or flights. I’ve never been on a prolonged cruise out at sea, but I did go on a short three or four hour boat ride this past August. If I recall correctly, September or October is around the time my rockiness/swaying started getting extremely noticeable. I’m certainly going to bring this up with my neurologist when I see him this upcoming Tuesday, but I’m wondering what people here in the forums think about swaying/rockiness/false sense of motion symptoms. Does it indicate MDDS, or is that still common for MAV folks? Thanks! ---
**Author:** ![Sally](https://mvertigo.org/letter_avatar_proxy/v4/letter/s/d6d6ee/32.png) [@Sally](https://mvertigo.org/u/Sally)\ **Post date:** [May 18, 2014, 11:58pm UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865/2 "2014-05-18T23:58:38Z")
Yes. Have heard both from my docs. SAL ---
**Author:** ![methanol](https://mvertigo.org/user_avatar/mvertigo.org/methanol/32/1612_2.png) [@methanol](https://mvertigo.org/u/methanol)\ **Post date:** [May 19, 2014, 6:03am UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865/3 "2014-05-19T06:03:12Z")
MDDS is rare and there are many people here who deal with constant dizziness and constant non rotational vertigo. I am one of them myself. Have you tried a benzodiazepine? These are the only meds which help me with that accursed rocking sensation. ---
**Author:** ![NickWatkins](https://mvertigo.org/letter_avatar_proxy/v4/letter/n/b19c9b/32.png) [@NickWatkins](https://mvertigo.org/u/NickWatkins)\ **Post date:** [May 19, 2014, 11:05am UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865/4 "2014-05-19T11:05:29Z")
It seems a lot of people with MAV do get better eventually with diet and the right meds, but there are still quite a few members of this forum who have seemingly been here for years without any relief, after trying every med and technique imaginable. Perhaps these cases are actually MdDS cases? ---
**Author:** ![whosthatchick](https://mvertigo.org/user_avatar/mvertigo.org/whosthatchick/32/1034_2.png) [@whosthatchick](https://mvertigo.org/u/whosthatchick)\ **Post date:** [May 19, 2014, 2:28pm UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865/5 "2014-05-19T14:28:14Z")
I have these symtpoms and i have migraine not mdds - i didn’t ever go on a boat or anythign which could have caused mdds. You can have these symtpoms and have migraine vertigo. ---
**Author:** ![ddias](https://mvertigo.org/letter_avatar_proxy/v4/letter/d/4da419/32.png) [@ddias](https://mvertigo.org/u/ddias)\ **Post date:** [May 31, 2023, 10:07am UTC](https://mvertigo.org/t/has-anyone-been-diagnosed-with-mdds-sounds-more-like-me/7865/6 "2023-05-31T10:07:26Z")
I would think that a 3-4 hour boat ride would be enough to set off MDDS. Are you experiencing MDDS or MAV? MDDS is not well understood, but some believe it is a form of vestibular migraine. Also, many MDDS patients respond well to migraine treatments.