On the 16th, the kid decided he’d be willing to try an elimination diet. He gave up gluten, cheese, chocolate, and cured meats.
That was also about the time that he reached his full dose on his prophylactic medication. My husband and I joked around about changing too many variables at once – not a good way to design an experiment.
And over the last couple of weeks, the kid seemed to be slowly doing a little better. He could walk pretty easily with a cane. He was sleeping pretty well. We’ve worked it out for him to return to school half-time when he’s ready (a class, then a break for a period, then another class, etc.). He wanted to start last week, but we had snow …
So over the weekend, he was spending time with a friend at friend’s house. Said friend was eating hot dogs and pizza. The kid was bringing over rice cakes and plain baked chicken. They’re teenagers. He was miserable.
We told him that, given his age, and the fact that he chose to do the elimination diet, and so on and so forth, if he wanted to call it quits, he could. The catch is, if he and his doctor agree that he really needs to do one, the two weeks probably wasn’t long enough to be meaningful. He’ll have to start all over, and the misery he’s already suffered counts for nothing. He was fine with that.
So, Friday for lunch, he had cheese pizza. Saturday for lunch, cheese pizza again. Saturday for supper (and it was a late supper), he had hot dogs. And Sunday for breakfast, he asked for a pepperoni pizza. (His diet is normally better than this. He was just craving all the stuff he hadn’t been allowed to eat.)
Anyway, by mid-day Sunday, he was miserable. He had lots of dizziness, lots of vertigo. He had almost no control of his right leg and foot, and just dragged it along after him when he was walking. To get around the house, he used a cane and leaned against the wall, and even then, he was having trouble staying upright. This attack lasted until well into the night.
So … are processed meats a trigger for him? But probably not gluten or cheese? (Or maybe it’s the cheese – I don’t know what was on the cheese pizzas at his friend’s house. We add extra parmesan cheese to pizzas we make at home. So maybe it was the pepperoni? Maybe the parmesan cheese?)
How do you know if something was a trigger, or if it was just a coincidence?