Head or neck movement a trigger?

Interesting comment. Makes sense. He should end up ‘knowing what’s left’ to deal with I suppose. Reading through your story bit surprised they didn’t put you on gabapentin before Pregablin. Sure they had good reason.

As you only got a diagnosis last week I’d think that’s more than enough for starters. Preventatives can take months to really kick in and if you start up on too many you’ll not be able to sort out what’s causing what if you do develop side effects, or, if it works, which is working. Best to tread water a while, avoid known triggers and manage symptoms while you wait and see. Helen

Hi What’s the difference between Pregabalin and Gabapentin? Even though I only was diagnosed with VM last week I’ve been on the Pregabalin for a couple of months because the orthopedic surgeon prescribed it when he thought it could be the disc leaking onto the spinal nerves that was causing the dizziness. I did find it took the edge of the worst of the dizziness so kept taking it, though I think that’s partly because it helps me sleep.

Thanks for your advice about taking things slowly to see what’s doing what. I’m sure you’re right. I’ve also just introduced all the supplements so that’s definitely enough to be getting on with. I do think they’ve made a bit of a difference the last day or two as well. It’s frustrating when my life is on hold though not to be able to try everything at once ha ha!!

Thank you! I will check it out!

I’m not sure of the exact differences between pregabalin and gabapentin, but I think it’s just Dr preference. My spine Dr gave me low dose gabapentin for a similar reason- to calm the nerve. I’ve taken it a few times, when I don’t have to get up at 4am the next morning! And even that low dose does help. Takes the neck, face and arm pain away, and takes my tinnitus away! No other drug has helped my tinnitus!

Very little I understand from reading about it but I’m no chemist. Pregablin is newer version of Gaba it seems and should have fewer side effects. My comment was made becsuse I was but surprised you were prescribed Pregablin and not Gaba because I’d assumed you’d been given it by neurologist for controlling MAV and I think Gaba is used more often by neurologists but now I see you were given it by orphopaedic makes more sense. Actually I have heard either can be used for MAV, and any long-term chronic pain condition too. Glad it worked for you for both but of course that doesn’t really help specialist finding root cause of the dizziness so I guess you’ll be going round and round a bit longer in more than one sense of the phrase! Still good to have some relief in the meantime. Helen

A post was merged into an existing topic: Head movement a trigger?

Hi all,

I woke up this morning feeling a little better than I have been doing.
Whilst making my breakfast and moving my head about, turning I had a lot of pressure feelings (like a migraine was on the horizon) I find if I do too much moving my head this can be a trigger so try to avoid this. (Need a neck brace) :see_no_evil:

Is this a common symptom for many Mavers? I find I’m especially bad in the morning and then I seem to get better as the day goes on.

:two_hearts:

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Yep, it’s always listed in any MAV symptoms list. Reaction to self movement. Majkr trigger. You’ll find it mentioned in lots of threads on here. In your case currently guess it’s just sign system has become more sensitive for some reason. I’ve had it myself last couple of days first time for maybe six months,

IMHO No you don’t. That’s about the last thing you need. Quite the opposite I’d say. The stiller you kerp it, the worse it will get and you’ll get a stiff neck to boot. I’m not saying keep turning your head about to see if it’s got worse (common practice. Everybody does it) and don’t do head turning exercises, just try to move it as necessary and as naturally as possible. Move chairs into circle for conversation, I spent years avoiding turning my head because I would get room spinning vertigo and that caused more problems.

Best bit of advice I was never given - a friend who had labs years ago was told by her GP ‘whatever you do keep miving your head. VRT therapist commended her on the free movement of her neck despite her balance disorder! I’m still working on mine. Helen

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Hi Helen

That news is reassuring! Even though it is uncomfortable im trying not to make too many allowences even though I feel as dizzy as a duck! Its settled down now.

I wonder why it is particularly bad in the morning :thinking:

My Botox can’t come quick enough! It does appear that with Ami, botox and diet some days are better than others, but I feel like I perhaps need to increase Ami as I’m still only on 20mg!

Thank you for your reply Helen.
I knew I could rely on your for a very helpful response! :two_hearts:

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Head movement is definitely a trigger. I move my head very slowly these days - avoiding any rapid and jerky movement.

I’m glad you’re asking these questions. :slight_smile:

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Well it is a symptom things are winding up or would be for me but knowing you I don’t suppose it’s worth bothering to tell you today wouldn’t be the best day despite the sun to get the ladders out and climb onto the roof to dust the roof tiles. If it needs to be done, no doubt you’ll do it.

Bit of a pattern that. Maybe because your balance system has been asleep overnight. Helen

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Good morning friends! @MNEK18, head (neck) movement, especially in the morning is probably my biggest trigger right now. Even when I am lying still after just waking, my neck muscles “jump” around for a while as if they are recalibrating for the day ahead. It was very unnerving at first, now I just ride it out and let it do it’s thing :laughing: Once I am up, showering is always the next step which obviously consists of bending my neck forward and back to rinse… this is where I’ve always had scary moments so I just try to ease my head / neck into necessary position. If I don’t make quite sudden movements I do pretty well. I do think a move up from your current dosage may be worth talking with your dr about though… you’ll know when / if you’ve gone too far but you may not have reached the appropriate dose quite yet. XOXOXOXOXO

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Haha Helen!! You will be pleased to know I haven’t ventured to the gym once this week because now my threshold is lowered I know not to push it :wink:

I am learning - I had a rest and it seemed to dissipate. :grimacing:

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Hey Renèe!!

I am sorry to hear you struggle with this too! Do you think its a sign you need to rest? It seems I am always rushing about when it comes :flushed:
I’m with you on slowing up head movements… it can be so hard to keep remembering your brain is too sensitive to even look around with causing some discomfort! It generally makes me much dizzier :pleading_face:
Yes, defo going to try go up with Ami - see neuro soon! :star_struck:

Keep well my friend! :two_hearts::two_hearts:

Last night I was at dinner with my family for my sons birthday, I didn’t feel well and knew something was going to happen so I loaded up on my meds ahead of time. towards the end of dinner I turned my head to the left and turned it back and LOST MY MARBLES… I don’t know why this happens but I have learned to turn my head ver slowly.

Best of luck to you friend.

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Oh dear!

That sounds very unpleasant! I’m sorry you’re suffering! Hopefully it will pass

:crossed_fingers:

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Thanks, it definitely makes our anxiety higher. It makes me nervous when I drive and checking my blind spots and stuff.

Yes moving my head makes me dizzy and massaging or vigorous stretching of the neck can start a full blown migraine. All my symptoms are worse in the morning especially visual vertigo and brain fog

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For anyone in doubt and, by the number of older posts there are on here relating I doubt there can be that many, it is official. And some days don’t I know it still!

”The most prominent specific feature of MV was head motion intolerance.”. Salhofer et al, 2012 after a investigation amongst 149 I think it was MAVers.

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I’m wondering how many of you have specific head/body movements as triggers? I can identify more positional triggers than food so far. I think I’m sensitive to alcohol, I know if I reach up into a shelf or lie flat on my back I’ll have problems… I wonder if this positional nature is common to VM even though it sounds more like bppv?

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