A large group migrated completely over to FB about 2014’ish and this site almost ceased functioning. Later it was revived and it’s been thriving again for some years. Obviously I’m biased but you couldn’t find a friendly bunch of like minded beings. No aggro here. We are far too specialised to ever have huge numbers of active members at any one time but we have a strong base and our regulars are warm, kind people. Some also do FB too for sure but we are still a very active site which incidentally is often recommended by various specialists in the US to patients.
Searching the archive offers a far more representative selection of comments than relying solely on whoever happens to be about currently. The fact that some of the posts may be ten years old doesn’t distract from their relevance. They still stand as individuals own experience. And you are more likely to be able to access a complete story with a beginning, middle and something approaching an end result rather than a brief snapshot in time. Karen’s story is just an example.
Do please go through the Welcome and Wiki sections. I didn’t mention them earlier because I was trying to respond more directly to your individual questions.
- One of the Founders wrote this extremely useful Survival Guide for VM back in 2014.
- Some Q&A about VM with some leading neurologists.
Btw Checking out the Visitors Map will give you some idea of actual visitor numbers.