I don’t always realize right off that my head’s not clear, that I’m getting thickheaded or fuzzy-headed or whatever you might call it. Not at my normal level of function.
So I’ve been talking over with my sweetie how she can best communicate “You seem unfocused” or “You seem unbalanced” or like that. One problem is that she’s a bit of a Nervous Nellie, and I need to differentiate her normal fussing from observations that are MAV relevant, to the extent possible. A complication is that it seems to be not so much specific behaviors as a gestalt.
Does anyone else find themselves in this position, and if so what do you and yours do?
David, this wouldnt work with my family, as nobody seems to notice as I fall sideways into the wall, stagger through corridors or crouch on the floor clutching my head. I think I have had this condition so long, everyone is immune to it, and I am one of those daft people who tries to be a “brave little soldier” and then complains when nobody has any sympathy!
My hubby does notice the low blood sugar and exhaustion before me, if we are out shopping, I will start to sweat, exhaustion will take over and he will quickly guide me to the food hall. I have been stood there clutching onto the tray shelf before now trying not to collapse.
David, this wouldnt work with my family, as nobody seems to notice as I fall sideways into the wall, stagger through corridors or crouch on the floor clutching my head. I think I have had this condition so long, everyone is immune to it, and I am one of those daft people who tries to be a “brave little soldier” and then complains when nobody has any sympathy!
Same here as well. My husband didn’t notice when I changed my hair colour from red to dark brown and had 10 cm cut off the length of it, so I doubt he’d notice something that would involve paying me some attention :lol:
Sorry, I didn’t mean to be flippant when you were asking a question.
I think the point you have raised is quite difficult for me to come up with an answer for, but I hope someone else will chip in with something more sensible!
beechleaf is right. I was guilty of being flippant and I’m sorry. It seems like you’re very lucky to have someone so sensitive to your needs although I can see if things are being misinterpreted how that would get old.
I usually don’t get so fuzzy headed that I present as different and I tend to be the one that is a “nervous nellie”. But my hubby does notice if I seem more worried or not paying attention to things because I am wrapped up in my own head issues (and trying to “soldier on”). I try to communicate with him that I feel “off” and dizzy, etc. He does his best to help with getting medicine, a cold pack, rub of my shoulders, hold my hand, or helping me get into the bed to nap.
David, would there be certain questions that she could ask you that would help her differentiate a normal day and a MAV episode? Something that takes focus and concentration that you would have trouble answering if it was a MAV incident? You said it basically effects your whole…so it would probably need to be something that sticks out more than something else, even if just a small bit. If not mental perhaps some physical “test”?
The best thing is that you have a supportive partner whom you can work with to come up with a solution
