Hi again and 'neck' issues

Hi all

I haven’t posted in a while but have been following some of the threads as I know there’s little point in thinking ‘ah, I’m cured, there’s not point hanging around THAT board again!’ :wink:
I’ve been a lot better since recommencing the betahistine a while back, but the last 2 weeks haven’t been so great. I’ve had about 3 sudden attacks of the spins rendering me incapacitated for a few hours (not days, thankfully), which I dealt with by going straight to bed with a clonazepam and sleeping through. Before all this I was practically dizzy free for a good few weeks and avoiding red wine but not coffee, chocolate etc. and have probably been eating too much of my home made banana cake which is too yummy for words. I have also been going to the gym lots and running 5 miles 1-2 times a week.

The 3 attacks are bizarre in that they came out of the blue and all 3 seem directly related to a ‘neck’ thing. Attack no. 1 was while I was at work, chatting with colleagues. I turned my head to look at my computer screen and wham! Had to be escorted to my car and drive home (v. embarrassing indeed :oops: ). Attack no. 2 was Saturday morning - woke up feeling fine, then my head somehow slipped off my pillow and sent me into a ridiculous spinning spiral which lasted all day and rendered me bedbound. Then the last one was following a day of wearing a halter-neck dress - we are having a lovely warm summer here. I’m wondering if the strap somehow affects blood supply to brain or impinges on cervical nerves/muscles.

Anyway, during all this I’ve started my VRT. Bizarrely my VRT physiotherapist is my boss’s wife, which is sort of handy as he’s going to unofficially know how ‘bad’ I am and not a shirker/malingerer, especially since I’ve hardly missed any work days. The physio reckons I’ve got dreadful gaze stability so we’re working on that. The exercises she gives me don’t seem to be triggers for an attack. She was interested in my report of the neck issues, but reckons I’ve got an incredibly flexible neck. Also, when I do the VRT exercises in her gym, I feel dreadful, as there are fluorescent lights, but when I do them at home, I feel ok (ish).

As we all know, this thing is FAR more complex than anyone can imagine…

DizzyIzzy x

— Begin quote from “dizzyizzy”

The exercises she gives me don’t seem to be triggers for an attack.Also, when I do the VRT exercises in her gym, I feel dreadful, as there are fluorescent lights, but when I do them at home, I feel ok (ish)

— End quote

Same for me Izzy, I’ve been doing VRT since December. At home they do absolutely squat, I can shake my head left to right, up and down, eyes closed etc and nothing…However at work (computers and fluorescent lighting) turn my head or bend down to get something and its ‘Uh oh’!!!

I dont believe the VRT is doing anything to be honest, I’ve had this discussion with the specialists and they say that being exposed to the computers/lights etc will help my brain to compensate??? My arguement was that if they are a trigger, then how can it possibly be beneficial…If chocolate is a trigger for example, then eating it daily isnt going to help is it…Same thing no???

:x

VRT does seem to help settle me. Perhaps the fact that I am controlling it makes it enough different from stimuli that come from without to result in the needed learning/reassurance.