Hi all. New member

Hi all,

Firstly I will give my history and try to make it as brief as possible. I am from the UK and the treatments and options are probably different in the US, Candada and elsewhere.

I am 54 years old and remember my first bad headache was at about 8 years old. Unfortunatey they are in my family,My Mum had migraines with aura so has my Dad,My younger sister has migraines with aura, my Granny had them and died of a brain haemorrhage and my Granddad died of a brain tumor, not a very good history! I had my first migraine with aura at 22 years old and remember it well! I suffered my first vertigo attack when I was about 25 and didn’t have another bad attack until years later, I have got dizzy occasionally from too much alcohol when I was younger. I am really shortsighted which doesn’t help especially now with the lack of focusing. I was diagnosed with ‘post viral syndrome’ about 15 years ago and saw 2 neurologists,one privately and paid for a brain scan who said I had c5/c6 discs that were worn so they are probably worse now and I think maybe it is a combination of things and my neck is making it worse.

The migraines with aura have continued and the vertigo attacks got more frequent when I got into my thirties and forties but not as often as the last couple of years. In the evening of February 2017 I had a really back attack in the evening,luckily I was at home and the ambulance came out. I was referred to an ENT/balance Specialist who diagnosed MAV. He did various tests but didn’t do a brain scan as didn’t think one was necessary! Following on nearly two years it has been horrendous. I am on a beta blocker and various supplements but the attacks aren’t improving. The doctor referred me recently to a neurologist but he cancelled my appointment as said he didn’t do botox injections!Menieres disease has been ruled out with 2 hearing tests. My ears seem to have fluid in them and get blocked.I have had a sinus cat scan but they didn’t bother with the ears. Now I can’t work at the moment.

I have also have ulcerative colitis and finally after two years have been diagnosed with parathyroid disease and waiting for an operation and wondering if abnormal calcium levels have anything to do with this and can’t find any answers.

Please can anyone advise?Sorry for long post. Kind Regards R