I’m looking for any advice and some support about what has been going on with me for the last few months. I have a long history of vertigo (a swaying/rocking feeling 24/7) that did start with a sudden less than a minute room spinning episode when I was in college about 15 years ago. I felt like I was swaying and rocking for 6 months before it slowly got better. Then I was fine for years before the same thing returned a few years later. then i was fine again, and I haven’t ever had a major attack like that however I would get a few weeks of swaying/rocking sensations that I never could figure out what triggered it. I have been told I had labyrinthitis and I did have caloric testing which showed a 45% deficit in my right ear.
Fast forward to January… I lost 35 pounds slowly over the course of a year and was doing fine. Except I lost my period. I’m 35 years old and have had a pretty regular one until I lost weight. The doctors said I had low estrogen so they put me on birth control. I took it for 1 month without issues then I got the rocking/swaying back so I stopped the pill. Took about 1 month to feel better. Ever since then I have had issues with the swaying/rocking coming and going. I can’t seem to kick it anymore… it’s freaking me out a little.
I’ve seen a neurologist and an neurotologist about this and they both say this is migraine. I am on a migraine diet and taking magnesium and B12. The doctors want me to do it for 3 months then tell them if I’m not better. So far it’s been on and off, but no improvement. I’ve been on it for about 1 month.
My period came back about 3 months ago on it’s on and I skipped three months and it came back about 3 days ago. So my estrogen levels must be changing. I wonder if that is why my vertigo is so stubborn? Any chance my body will get used to these hormones and I’ll feel better? I don’t know… I don’t know what this is. I’ve had doctors tell me everything from Labs, BPPV, menieres, and now MAV. I do have some tinnitus however it has never been associated with the dizziness. I got it before I ever had a flare of the dizziness. I just assumed it had to do with my screwed up inner ears… Maybe this is migraine related…
sorry for the long post… I just need to vent to people who can understand