Hope is Lost! Is this Vestibular Migraine?

Hi there,

I’ve been dealing with 24/7 dizziness and photo-phobia for almost a year now. I’ve also have ear fullness, occasional pulsating in the left ear, headaches in the back of the head, floaters. In addition, it’s hard to use a computer cause my eyes start to hurt and I have gotten some popped blood vessels in my eyes. In fact, it’s so bad I have to wear sunglasses everywhere…even while using a computer. Furthermore, when this first started I had some crazy head pressure and electrical shocks in the head…I thought I was having a stroke. But luckily, the electrical head shock and constant head pressure is gone.

Anyway, so I’ve had a CT-Scan done, MRI, ENG, Hearing tests, blood work, eyes checked etc all clear. I’ve been to so many doctors…I’ve lost count. The one good doctor in all this believes I have vestibular migraines. However, the doctor he referred me to is backed up indefinably (Terry Fife). His second choice doesn’t accept my insurance. So, I recently went to his third choice who doesn’t specialize in migraines (A standard Neurologist).

And, she told me to go see a psychologist and wants me to get a MRA to rule out an aneurysm. All these medical tests are driving me crazy. Furthermore, the reason she wants me to see a psychologist is because I told her I was depressed. Of course I am depressed, I’ve been like this non-stop for a year now. I’m just sick of getting all these different opinions and Neurologists telling me it’s all in my head. Not sure what to do now. There is some good news though. I just read “Heal Your Headache” and been doing a migraine diet for a couple weeks now, and I’ve noticed the dizziness improving quite a bit, but the photo-phobia is still there. Anyway, if this sounds like migraines let me know. The last neurologist doesn’t think it is since the dizziness and photo-phobia has been constant and non-stop. So, I’m not sure what to do now. Maybe I need to fly into another state to talk to someone who specializes in Vestibular Migraines. I appreciate your feedback.

Certainly sounds like VM and it can be chronic and constant despite what you have been told. You fit a lot of the symptoms and the improvement in dizziness since starting to do the migraine diet also points to it being VM. If you can try to find a neuro who is experienced in migraine. If you say where you live or can travel to I am sure someone here can give you a recommendation for a good doc :slight_smile:

— Begin quote from “Jem”

Certainly sounds like VM and it can be chronic and constant despite what you have been told. You fit a lot of the symptoms and the improvement in dizziness since starting to do the migraine diet also points to it being VM. If you can try to find a neuro who is experienced in migraine. If you say where you live or can travel to I am sure someone here can give you a recommendation for a good doc :slight_smile:

— End quote

Thanks for the reply. I just got an appointment with Terry Fyfe at his Tucson office. Looks like it’s just the Phoenix Office that’s backed up. The only problem I have to wait till June 7th.,which sucks, but I get the feeling it will be worth the wait. So, I do live in Arizona. If anyone knows of a doctor who specialize in MAV in Arizona besides Terry Fife…please let me know. I’m also open to going to any states close to Arizona. I would love to get this taken care of earlier. Anyway, thanks again.

Joe–

If you actually go to the psychiatrist, he/she may be willing to put you on a trial dosage of migraine preventative meds. I was sent to a psychiatrist because the primary care doctor who was standing in for mine (who was on maternity leave) decided that my tests said I was fine so I must be a nutter–“you may be suffering from some sort of mood disorder or anxiety problem.” :roll:

Anyway, I went to the shrink because, well, honestly, I didn’t have any other avenues to follow at the time, and he’s the one that went down the migraine lane. Gave me a prescription for Topamax and a referral to a specialist. So, maybe if you go to the psychiatrist and explain your situation with the waiting until June 7–he/she could consider managing some medications for you until you met with the dr?

Just a thought–might not be a good one though

Search for Chronic Subjective Dizziness, sounds more like that than vestibular. Especially if your dizziness is more heavy head than spinnning vertigo, or imbalance. I have similar symptoms and I seem to fit into the CSD category much better. I don’t get migraines only occasional headaches. Read this link and see if this sounds like you.

mm3admin.co.za/documents/doc … 023390.pdf

— Begin quote from “nokes”

Search for Chronic Subjective Dizziness, sounds more like that than vestibular. Especially if your dizziness is more heavy head than spinnning vertigo, or imbalance. I have similar symptoms and I seem to fit into the CSD category much better. I don’t get migraines only occasional headaches. Read this link and see if this sounds like you.

mm3admin.co.za/documents/doc … 023390.pdf

— End quote

You never know. But, I think it’s more VM related because of the ear fullness, ear pulsing, light sensitivity, boat rocking type of dizziness. I’ve also have seen improvement since taking on the Migraine diet. Thanks for the PDF though. I probably won’t know for sure until I see the Migraine specialist in June. In addition, it looks like many of the people on this board have the constant dizziness and photophobia.

Honestly? Migraine or CSD–based on the paper presented here, doesn’t really matter much except for the diagnostic verbage. The medical treatment stated for CSD includes SSRI’s and nortriptalyne (sp?)–which is often phase 1 of treatment for a lot of migraneurs. And, I find it hilarious to argue whether this is “psychiatric” or “medical” as the reasoning behind EITHER is chemically based and chemically mediated, thus requiring some level of chemical control (aka medication) to stop the feedback loop that makes us dizzy.

6 of one, half dozen of the other as long as you start to feel less woozy far as I’m concerned-- :slight_smile: