Ha, well, I do live with my parents, actually. To be honest I think it would be easier for me to make my own decisions in terms of seeing doctors and seeking treatment if I was living alone, but I am supporting myself financially. As for my job, I think I am able to balance it with the illness, better than I thought. The only thing that really scares me is that I think Iāve forgotten what feeling normal is now, since Iāve been dealing with this thing for so long. @flutters I really really hope so, I was being really pessimistic today as I was upset that I couldnāt bring myself to fully commit to work today as the stress about appointments and about what my future would look like impeded my ability to think properly..
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I get it. Iāve been off work trying to pull myself back together a whole month. Going back on Tuesday has me completely freaked out - and I own the company. MAV is an extreme sport.
Im the same Emilyā¦have a few days off a dread the return knowing your symptoms will ramp up as soon as work day arrivesā¦i cant see me lasting until 60 no way!!
Jo x
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Two to three months is not an unusually long time to wait to see a neurologist who knows something about MAV. Make the appointment and also ask them if they do something like a ācancellation list,ā where if a patient cancels an appointment they start calling people to fill in that slot. If they do, ask to be put on that list so that maybe you can get in sooner.
There can be a long wait for many specialists, especially the ones who are good. I once waited nine months to see a specialist (in a different field, not related to MAV).
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