— Begin quote from “pamg6”
Like you, I was UNABLE to function!!!I am able to live my life now, with 3 migraine preventatives and time. At my worst, I was unable to leave the house and I was afraid of being alone. It took awhile for me to be diagnosed, so alot of that time I didn’t know what was wrong with me. Once we found out, and I was put on my 1st med, it was still very hard to function. As the meds began to work, I then began to put my life back together. It took quite awhile before I was able to feel normal and then more time before I felt normal enough to have my life back. So even though things like exercise are suggested, that also took awhile to incorporate into my life.
Really, we live in such a faced paced society, but this migraine syndrome requires something different from us. Today’s world allows us instant communication, drive through banks, food, prescriptions etc…and yet migraine requires us to slow down, reflect on what in our life is causing these symptoms and to avoid the fast paced world ideas. It really is our body saying, “hey wait a minute, I don’t like this food you are feeding me, or the lighting you expect me to stand in, poor sleeping habit etc…slow down and try to keep me from these things!!!” Hang in there you will get your life back, but you need to expect a “new normal” I have had to say no to many things these days, and pay more attention to how I am treating my body and self, or the awful symptoms come back…the meds are a tool to help us but not the COMPLETE solution, there are things we need to do as best we can. the other thing that migraine requires of us is patience…which is SOOOOOOOOOOO hard when you feel miserable. But that REALLY stood out to me at my worst…the meds take time to work, sometimes you need to add in 1 or 2 more, or that med doesn’t work and then you need to try another…so patients is vital (hard, difficult, obnoxious, but vital)AND routine…migraine likes routine same eating time, same bed time etc…as best you can.
We are all in this together, so you are not alone in your feelings, and the other hard part is that as mad as we get? that just triggers more symptoms!!! BUMMER!!! so decide that this is your new normal, this will take awhile, slow down and tell yourself “it is what it is, getting mad about it will just aggrivate my symptoms” you will have your new normal, I promise!!!
— End quote
That is my problem I am afraid to leave the house by myself and being alone for fear that something is going to happen and no one will be around. This is so not me…I have never been afraid and never been unable to not be on my own. So how long does it take…and if you do not mind what meds are you on and how long did it take them to work…
I know my normal will not be what was once my normal but at least to be able to live without fear and live to be able to go and do things again within limits.
I hope my neuorlogist can give me some hope…to be able to move forward.