Interesting you’ve been told the same. This basically is the UK approach. Medics have no idea of the devastation VM can caused. It’s totally unappreciated. You say before Venlafaxine your attacks were ‘harder and the in between not so good’. Before Propranolol I had reached the point where there was no ‘in between’. Attacks had become back-to-back. Propranolol dramatically decreased the severity. Initially the frequency too. I thought they’d stopped for good when I went 3.5 years without one but it didn’t last longer than that.
Can’t say how frequent they are now. Yet to establish a pattern. I’d suspect they may be back to where they were pre-medication which was about two a year. That was before I turned chronic (2014) ended up being sent to VRT by ENT and six months of that just pushed me over to the point I suddenly lost my ability to stand up and into seamless vestibular attacks. In all I’m not far short of 20 years myself.
For myself being as mine is so closely hormone linked I think there’s a good chance it might eventually fade so far into the background I scarcely notice it but I’ve never been offered any form of prognosis. I’m sure most sufferers regularly wonder.
As you say we do seem similar in most ways but I wonder. You say your attacks can keep you in bed for 2 weeks. May I ask why. It so bad for the human body to be immobile for so long not to mention the mental anguish involved. I’ve had to stay immobile, lying down eyes closed because (A) opening them caused severe objective vertigo that didn’t stop until I closed them again, (B) the pressure in the back of my head when I was in an upright position was so painful as to become unbearable and I was in danger of passing out (but never have) and/or (C) I had no balance, ie was unable to stand up unassisted. Tinnitus, being lightheaded and/or having a stiff neck wouldn’t ever have kept me in bed. I suspect because you are so used to having the same symptoms you’ve forgotten to mention them and so it appears you are only telling half the story.