The million dollar question
Like you I am on Amitriptyline and have been for about the same time (nearly 5 months) and it basically gets rid of 80% of symptoms and all the worst ones (migraine’s, most nausea, all the visual vertigo, inability to watch TV or use computer for more than 30 mins) that made life, frankly, not worth living.
Thing is, the recovered ones are rarely on the forum. Some of those who have not recovered (yet) may have moved to the FB sister site (VM pro?). Haven’t seen many people who’ve come off meds (but look at Beatles909 - he recovered on NO meds after about 4 years? liv85 has managed to find relief with just supplements in the space of a few months)
I have a theory that MAV is actually a bad case of BPPV. I’d lay a bet that’s why I have MAV as sometimes I get very obvious positional vertigo and ‘the spins’. Hain states that BPPV can give you migraines. He also states you can have an acute period and then periodic relapses. I’ve had all that. The reason I mention that is because if it is all due to debris moving around your ear its anybody’s guess how long that will take to clear and the amount of it will surely vary significantly by person. I know that it must have blocked some plumbing in my ear as I get some auditory symptoms and a feeling of pressure that varies. Let’s hope that stuff dissolves asap!
Speaking personally I’m a lot better than I was even 3 months ago, but my symptoms have waxed and waned since and some things have got slightly worse - I can guarantee spins at the moment by moving onto one side in bed in the morning, but I could almost guarantee you that in 3 months I won’t get that anymore. I used to get a fluid movement sensation and a dripping noise, but that has gone after having had it for over a year and a half. I had a spell of nausea on and off for a month during my medicated period, but never feel nauseous now, so that’s something. I’ve had short periods recently where my tinnitus has disappeared for a couple of hours, only to return (grrrrr!) so I wonder if i’ve got some form of secondary hydrops.
It’s probably harder on meds to determine how much better you are.
Psychologically I’ve definitely made the most improvement - with every day I get more cheerful and l look forward to things more. The condition has let up just enough for me to become more philosophical and accept my situation. I have grown used to the tinnitus, and the tinnitus seems to have decreased a little.
I’m hoping i’m not going to have some crazy big relapse and things keep continuing to get better.
I’d agree with you though - on balance, recovery has been glacial, but it has been happening.