How many of these symptoms do you have?

Hi folks:

Out of curiosity, how many of the symptoms below do you have? Keep count…

Head, Face, Neck
Unexplained hair loss
Headache, mild or severe, seizures
Pressure in head, white matter lesions in brain (MRI)
Twitching of facial or other muscles
Facial paralysis (Bell’s Palsy, Horner’s syndrome)
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness
Dental problems
10. Sore throat, clearing throat a lot, phlegm (flem), hoarseness, runny nose

Eyes/Vision
Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights, peripheral waves or phantom images in corner of eyes

Ears/Hearing
Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears

Digestive and Excretory Systems
Diarrhea
Constipation
Irritable bladder (trouble starting, stopping) or interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System
Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems
Shortness of breath, can’t get full/satisfying breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Endocarditis, heart blockage

Neurologic System
Tremors or unexplained shaking
Burning or stabbing sensations in the body
Fatigue, Chronic Fatigue Syndrome, weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Light-headedness, wooziness

Psychological Well-being
Mood swings, irritability, bi-polar disorder
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Narcolepsy, sleep apnea
Panic attacks, anxiety

Mental Capability
Memory loss (short or long term)
Confusion, difficulty thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Difficulty finding commonly used words
Stammering speech
Forgetting how to perform simple tasks

Reproduction and Sexuality
Loss of sex drive
Sexual dysfunction
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge
Testicular or pelvic pain

General Well-being
Phantom smells
Unexplained weight gain or loss
Extreme fatigue
Swollen glands or lymph nodes
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a “flu-like” illness, after which you have not since felt well
Low body temperature
Allergies or chemical sensitivities
Increased effect from alcohol and possible worse hangover

If you have 5 or more symptoms from the list above, you should be aware that the list is a symptom list of Lyme Disease with related co-infections of Babesia, Bartonella, and Erlichia.

There are some good discussions and information going on right now over in the “other illnesses” section.

Lyme and co can cause dizziness, Labyrinthitis, and rocking simmilar to MAV.

I don’t know about others but to me this is not an appropriate post for a migraine forum. Migraine can have MANY different symptoms.

this should be in the other illnesses section where I am guessing scott will move it

Yeah this should be moved. We all know migraine can cause 101 different symptoms

I saw Dr S yesterday and asked him about Lyme and his views were as follows:

That Lyme is very rare here. That there are other places in the world where it is endemic but not in the UK.

He also said it would be more rare again to suffer Lyme which presents with the kind of symptoms I have (my main symptoms are dizziness, vertigo attacks, fatigue and neck pain) and without knowing I had received a bite. He also said it normally affects people who are outdoors a lot, rambling etc, which isn’t me.

Whilst he didn’t explicitly say don’t get tested, he implied he did not think testing was really necessary for me. He also said do you have any problems with your periods? I confirmed I didn’t. I am not sure if that is a factor in considering a Lyme diagnosis. He also pointed out that I have responded well to the Nortriptyline so it makes sense to follow the current path of MAV/VM.

I just want to clarify that those were Dr S’s views for me. I don’t know if this might change for someone else with other symptoms. Also I know those with Lyme believe that the numbers of cases are way higher than reported and that doctors don’t consider or test for Lyme anywhere like they should. Ideally I would still like to rule out Lyme by test to be sure as I don’t believe anybody knows enough about Lyme scientifically to understand how it works and that includes doctors. One thing I have read is that even with a positive Lyme diagnosis, the results should be interpreted only alongside the patient’s history and symptoms. Therefore does that mean if I tested positive for Lyme then they would assume it is causing my VM symptoms even though my history and lifestyle would imply I don’t have Lyme. I am still pretty confused about how it all works, as I am sure lots of people are. Only debate, discussion and lots more research seem to offer the hope of untangling the web of confusion x

blah blah blah… you could basically say that any bloody symptom is lyme… what a load of bollocks

— Begin quote from "RichyF"

blah blah blah… you could basically say that any bloody symptom is lyme… what a load of bollocks

— End quote

:lol:

— Begin quote from "RichyF"

blah blah blah… you could basically say that any bloody symptom is lyme… what a load of bollocks

— End quote

Except I, once upon a time, had the following at one time or another (never all at the same time as they wax/wane and come and go):

Head, Face, Neck
Headache, mild or severe, seizures
Pressure in head, white matter lesions in brain (MRI)
Twitching of facial or other muscles
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness

Eyes/Vision
Double or blurry vision
Increased floating spots
Oversensitivity to light
Flashing lights, peripheral waves or phantom images in corner of eyes

Ears/Hearing
Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears

Digestive and Excretory Systems
Irritable bladder (trouble starting, stopping) or interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System
Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems
Shortness of breath, can’t get full/satisfying breath, cough
Night sweats or unexplained chills
Heart palpitations or extra beats

Neurologic System
Tremors or unexplained shaking
Fatigue, Chronic Fatigue Syndrome, weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Light-headedness, wooziness

Psychological Well-being
Mood swings, irritability, bi-polar disorder
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Panic attacks, anxiety

Mental Capability
Memory loss (short or long term)
Confusion, difficulty thinking
Difficulty with concentration or reading
Difficulty finding commonly used words

Reproduction and Sexuality
Loss of sex drive
Sexual dysfunction

General Well-being
Unexplained weight gain or loss
Unexplained fevers (high or low grade)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Low body temperature
Increased effect from alcohol and possible worse hangover

And now, after treatment I just have the following:

Head, Face, Neck
Twitching of facial or other muscles

Eyes/Vision
Increased floating spots

Ears/Hearing
Ringing in one or both ears

Respiratory and Circulatory Systems
Night sweats or unexplained chills

Read up on Syphillis, another spirochetal infection like Lyme. No one debates that Sypillis can get into every organ and bodily system and wreak havoc. Why do you mock that Lyme can when it is also a spirochete?

— Begin quote from "robertgreen99"

— Begin quote from "RichyF"

blah blah blah… you could basically say that any bloody symptom is lyme… what a load of bollocks

— End quote

:lol:

— End quote

Richy! Stop your killing me! :slight_smile: xx

That’s a bit harsh Richy. I think we need to all be aware of these conditions and make our owns minds up about how we proceed because a while ago people may have dismissed MAV. I think we are all learning at the moment so we shouldn’t try to silence people because they are saying something we don’t want to hear or that we don’t agree with.

someone else could say blah blah blah that every symptom could be a mav symptom too.

i think lets just move this conversation to the appropriate section and be done with it.

— Begin quote from "Jem"

That’s a bit harsh Richy. I think we need to all be aware of these conditions and make our owns minds up about how we proceed because a while ago people may have dismissed MAV. I think we are all learning at the moment so we shouldn’t try to silence people because they are saying something we don’t want to hear or that we don’t agree with.

— End quote

Jem, I am at the point now where I am totally fed up with the continuos flow of Lyme threads. I am all open to people airing their views and then people making up their own minds on the condition and steps they wish to take to finding out if Lyme is a possibility for them, but I think there is now enough information on this forum for people to make their own minds up.

We do not need a constant flow of Lyme threads day in day out, it really doesn’t benefit anybody.

I have watched the documentary on Lyme and I am fully aware of the complications that people suffer with with the horrid condition known as Lyme but one thing I have noticed is that the disease is “progressive”. I have not got any worse since my symptoms started and I am therefore not going to prop up doctors making thousands of pounds from each patient desperate for an alternative diagnosis. I am also highly sceptical of the process taken for diagnosing people with Lyme. I haven’t heard yet of someone who has had a negative result.

My response to the OP may have come across a bit harsh, but in their own subtle way the mere act of creating more and more threads about this subject is just as insensitive and leads people to constantly question their diagnosis, causing further stress and anxiety that is simply not needed.

Lets make a Lyme section if need be… then people can read the facts and make their own mind up from there, but this constant questioning of people’s mav diagnosis in every thread is just not needed!

We may aswell start threads about other conditions which also list all of the symptoms of MAV. I bet you could have any neurological condition on the surface of the planet but nope, if you have MAV then you most likely have LYME aswell. Why can we not have MS or Fibromalgyia or autonomic dysfunction. Its just as probable as Lyme… and you dont even need a tick to bite you for those conditions…

But we have to consider that if the issue of Lyme is cropping up so regularly then maybe that could be because Lyme IS a factor in many people’s MAV symptoms. The same may also be true of other neurological conditions. As there is no conclusive test for MAV then the fact is that none of us know for sure if we have it or if indeed there is another underlying issue causing, exacerbating or feeding into the MAV. Whilst I agree that aggressive posting about Lyme can be annoying, I also don’t think we should censor or abuse people for expressing their view, especially as I am sure that the motivation is not a bad one but is to try and help people. I am sure if you had a Lyme test which turned out to be positive then you may change your thinking somewhat and you may then feel a need to raise awareness about it. I don’t enjoy the fact that the issue of Lyme puts a question mark over my diagnosis and I certainly don’t relish the thought of spending hundreds of pounds on Lyme testing but I wouldn’t try to silence people just because what they said was inconvenient to me and was not what I wanted to hear. I have been wrongly diagnosed by too many doctors, specialists and experts to ever think I can stop learning and just rely on what they say without ever questioning it.

There’s no way to test for typical migraine either, but we know that the Aura, Headache, Nausea, Scintillating Scotoma etc… are symptoms of the migraine diagnosis.
If someones symptoms are getting progressively worse then by all means it really does make sense to get tested.

If I did get tested and it was a positive result I very much doubt I would trust it. I would go by what the Neuro has said over here and get a lumbar puncture of the spinal fluid to truly determine if it is chronic Lyme.

Has a controlled scientific study even taken place with people with Lyme and those without any symptoms what so ever? to really determine the validity of the tests?.. i wonder.

I also am really confused that people think that in the US, one of the most litigious societies in the world, that a lab would be allowed to operate for decades and be under FDA audit but still be able to pump out falsely positive test results…

The reason why this post is getting mocked is because its in the wrong section once again. Why is the 100th lyme discussion in the GD section. People are fed up of it and thats why its not being taken seriously

Scott has been kind enough to allow lyme discussion to take place in the other ilness section

Bcb1200 - you know this should go in other ilness section thats why it hasnt gone down to well

No mocking has taken place in serious discussions in other ilnesses

THIS IS A MIGRAINE FORUM

— Begin quote from "RichyF"

If I did get tested and it was a positive result I very much doubt I would trust it. I would go by what the Neuro has said over here and get a lumbar puncture of the spinal fluid to truly determine if it is chronic Lyme.

.

— End quote

Quick comment on this. As. Dr. Burrascano (Chronic Lyme Guru) states, lumbar punctures are to look for OTHER things…NOT lyme disease. A lumbar puncture is very specific, but it is not very sensitive as it only finds <20% of lyme cases. Imagine having a bucket of water with a teaspoon of germs in it. You take out one teaspoon…will you see a bug or not? Probably not.

The reason some like myself are passionate about is is specifically because there is no test to proove you have MAV, Fibromyalgia, Anxiety, CHronic Fatigue, or other symptoms. People here widely accept they have MAV. All I’m trying to do is bring awareness and ask “are you sure about that.”

If you look at the list of Fibromyalgia symptoms they are identical to Lyme. Most LLMD’s and Lyme researchers believe they are the same disease, except Fibro patients have no treatment plan and only cover up symptoms never addressing root cause (the infection.) Syphillis used to be caused “The great imitator” because it mimicked other diseases. Lyme is called “The New Great Imtimidator” for the same reasons. I’ve met dozens of folks who were originally diagnosed with Fibro, CFS, MAV, Meneirs, Labyrithitis, anxiety disorder, ALS, Parkinsons, Lupus, etc, and it was really Lyme. They are now well.

Richy, the comments in your last post and your other post with the neuro are all great and represent valid opinion and info on Lyme. By all means, question, debate or disprove Lyme in this way. In fact I agree with you about the issue of progressively getting worse being a factor in considering Lyme as a likely diagnosis or not. I just don’t think it’s very fair to get nasty and try to silence people. Anyways I think I will say goodnight. I don’t want to fall out with people, I just wanted to stand up for the right for everyone to express their views.

Well if the views got expressed in the right section then there wouldn’t be these sarcastic replies

BCB – I specifically asked that Lyme discussion take place in the Other Illnesses forum. I mean it. Last time I will be writing this.

Scott