So, I’ve been through much testing. I have had an MRI without contrast, CT Scan, full vestibular work-up with Dr. Hain.
My symptoms have waxed and waned for 8 months. Dr. Hain suggested I had a few mild problems. Right ear imbalance, mild migraine, fluid in left ear (which I believe is gone now) and some slight neck issues (due to the cervical nystagmus observed during testing). He’s given me some recommendations like ping pong for VRT and lifestyle changes to try initially.
My question is: I’ve had headaches originating deep within my left ear. They are always in the same location. This is not normal for me. In addition, I’ve developed hyperacusis and a beeping-type tinnitus on top of a regular constant, buzzing tinnitus. Sometimes, my left ear thumps or twitches on its own, too.
My main problem is obviously dizziness, though. And, although BPPV is gone, I am just unsteady moving my head around too much. I’ve also had some visual disturbances like wavy lines, light sensitivity. If I look up, left or right too quickly, I feel “off”.
I’ve read up on unruptured aneurysm stories, where the annie presses on a nerve and causes vestibular issues like tinnitus, hyperacusis, vertigo, a pressure in the head, etc. The only way to my knowledge, that it can be diagnosed is through an MRI or CT scan, both having contrast. Most of us have not been sent for these tests so how do we really know?
I’ve been to 3 neurologists, 3 ENTs, and Dr. Hain, and none of them have even suggested this. Do you think there are other telltale symptoms? I know they don’t like doing anything with contrast unnecessarily but I am just concerned about the headaches always occurring in the same exact location.