Deleted the last one by mistake!
I’m going to save most of my long and complicated story for when I’m feeling less dizzy, but, in a nut shell, I’ve been 24/7 dizzy and migrainous for 8 weeks after banging my head and recently diagnosed by Dr Surentherin as having MAV.
This is my 3rd chronic episode in 5 years (previously undiagnosed) but this is by far the worst and most continuous it has been.
The last 2 episodes led me to depression & extreme anxiety (the result, not the cause) and so, despite my desperate protests, this is how all my symptoms were explained away. It took some serious mental gymnastics to believe that this was the case but after visits to several neurologists and an ENT, I had little choice but to accept it.
The impact on my life has been devastating. 5 years of questioning my sanity and doubting myself at every turn. That’s in addition to suffering the symptoms of the bloody thing, which are horrific enough. Quite frankly, I feel traumatised by it. I should feel the diagnosis is a relief, but I don’t. Somehow it almost feels worse? At least I had the illusion of control when I thought it was all psychiatric.
Either way, I’m still trapped in the hell of 24/7 symptoms.
I have a demanding job (which I’ve been off from for the last 8 weeks) and two young children age 5 and 3. I’m terrified of losing my job and completely overwhelmed at not being able to function or do anything normal with my poor children. So, guess what? I’m anxious and depressed. I’m also having daily migraines plus the whole spectrum of vestibular stuff.
Before I managed to figure out what was going on, I upped the dose of my antidepressant (escitalopram) and then pre-emptively started on pregabalin, which I’ve had brief stints on before because of the anxiety (and had some leftover). I did this because once I knew what was going on, I thought it might help.
When I saw Dr S, he was concerned that I can’t tolerate the pregabalin at the doses he normally uses (I can’t manage more that 150 and have never managed to stay on it for more than a few months before stopping) so he added pizotifen.
I lasted 4 days before stopping. I know that’s not giving it a fair go but I really couldn’t do it.
So now I’m even more desperate and wondering what’s left we can try. I have low blood pressure and am already on the max dose of an SSRI (escitalopram). Doesn’t seem there are many options left?
Goes without saying that I am extremely med sensitive.
Thanks for reading and (hopefully) offering hope of alternatives.