Introductory pin?

[flutters]

James,

I agree with Vignesh. The tests need to be in there. We also should include the list of specialists. I’ve personally seen GP, ENT, two neurologists, audiologist, optometrist, vestibular rehab therapist and a cognitive therapist. I think I’m only missing the neurotologist to have a full set.

I’d also love to see a page that gets into the science - perhaps links to the various articles we’re all basing our theories on - vestibular, neuro, metabolic, space aliens, what have you. This would be in addition to a basic resources page with the more standard sources like Hain or VEDA.

Thanks,

Em

[Manatee]

I think all of the ideas are good. It could be started as a new thread, titled “Vestibular Migraine Survival Guide 2018,” with perhaps a reprint of Scott’s excellent article, then links to the other documents mentioned, links to notable websites, etc. It could also include a link back to this thread, “Vestibular Migraine Survival Guide 2014.”

Maybe we should first define some general categories for the links & documents, then work on listing the specific links. Here’s a start, off the top of my head and in no particular order:

• Websites and Other Resources (note: this would be links to things like Hain’s site, VEDA, etc.)
• Medical and Vestibular Testing
• Types of Specialists
• Migraine Triggers and Diet
• Treatments (Pharmaceutical and Supplements)
• Books
• Research Papers, Clinical Studies
• Scientific Theories
• Other Support Groups (note: could include Facebook groups)

[turnitaround]

Yup. With the Discourse engine we can set these up as Wiki’s.

I think we could allow users with certain trust levels to edit them. Let me look into that.

All that remains is us showing a responsible respect for different views and not ending up in editing wars and arguments over phrasing.

So thanks @Manatee and @flutters I think this is how we structure it, headings first leading to sub-post wiki’s perhaps.