Is tinnitus part of MAV? Please answer!

I’ve had tinnitus for as long as I can remember and it has never been a real big problen. It’s kind of a crickety/seashell noise but very quiet. And it has never been worse with my vertigo attacks. But I have noticed over the last year it has been getting louder and louder from time to time and now it sounds more like static. It is usually bilateral though the left ear only has pulsatile also.

Is tinnitus usually part of MAV? I don’t have a diagnosis yet but I’m leaning towards MAV rather than MM, however, I wonder if because of the tinnitus I may not have MAV or worse, do I have both?? Oh horrors!!

Sometimes it is hardly noticable and other times (like right now) it is driving me crazy. Also, I have been feeling some ear pressure lately. The thing I probably dislike most about it is that people say their tinniutus gets worse before an attack comes so now I am waiting in fear for that to happen.

Do you find it to be worse before an attack?

Yes, tinnitus is a common symptom of migraine. I have had it since this all started. When my other symptoms flare up, so does the tinnitus. In other words, the worse I feel in general with migraine, the louder the ringing is. I was initially diagnosed with Meniere’s by my GP. Fortunately, she sent me to an ENT for confirmation. He confirmed I do NOT have Meniere’s. A neurologist diagnosed migraine.

Since your tinnitus is usually bilateral, chances are it is not Meniere’s causing it. If you always had it in the same ear, and not both, Meneire’s would be more likely. At least that is what I learned from the ENT. It is possible to have Meniere’s in both ears, but it is much less common than to only have it in one.

I also had a lot of ear pressure it the beginning. Sometimes it would be in one ear, then the other. Other times it would be in both. Fortunately, I haven’t had that symptom in over a year.

Are you seeing an ENT, a neurologist, or some other specialist?

In my case the tinnitus developed roughly a year after the first dizzy spell. I had never had any tinnitus in the past and since I developed it soon after I started getting dizzy - along with a sensation of pressure in my left ear - I am certain it’s all related. My tinnitus is variable - sometimes gone completely - sometimes bad enough it drives me nuts - typically a low grade high pitch whistle. Unilateral - left ear only. Although it is variable I cannot see any assocation between the level of tinnitus I’m experiencing and the degree of dizziness. If I chew something that requires alot of jaw pressure (like a tough steak) the tinnitus definitely pulses (gets louder) when I bite down. I’ve found it also gets louder if I push in on my chin. These effects (along with Beech19’s posts) have led me to pursue treatment for TMJ. Incidently, I’ve also been assured (by several doctors) that I do not have Meniere’s because I do not have hearing loss. Apparently they do not diagnose Meniere’s without hear loss anymore. Current theory is that true Meniere’s disease is always accompanied by objective hearing loss.

— Begin quote from “Chaz”

Incidently, I’ve also been assured (by several doctors) that I do not have Meniere’s because I do not have hearing loss. Apparently they do not diagnose Meniere’s without hear loss anymore. Current theory is that true Meniere’s disease is always accompanied by objective hearing loss.

— End quote

I was told the same.

Thank you Chaz and Marci for your quick response. I’m going crazy with worry here. It is reassuring to hear of others who have tinnitus with MAV. And from what I also know bilateral with MM is rare especially if it is from the start. My pressure is also in both ears.

Marci, I am not seeing any kind of doctor now, but have been to both ENT (3 of them) and neurologist. No neurotologists anywhere near me :frowning: May I ask what it was that made your doctor confirm you DON’T have MM?

Chaz, your tinnitus sounds like mine, sometimes barely there other times driving me crazy. I’ve also noticed mine gets much louder if I push my chin forward but my dentist confirmed I don’t have TMJ!

My hearing loss is in the high range only (about 45 decibels), not sure if that would “disqualify” me for MM or not. I’d like to think it would.

BTW, I didn’t mean to sound bossy in my subject line when I wrote “please answer.” I was just feeling very apprehensive when I wrote it. Sorry!!

bookworm,

The ENT seemed suspicious of the Meniere’s diagnosis right from the start. I had so many other symptoms that didn’t fit Meniere’s. Once the hearing tests and ENG came back normal, he ruled it out. The neurologist diagnosed migraine after a whole battery of tests came back normal, indicating that I didn’t have any of the other conditions that can present similar to migraine.

I didn’t think you came off as bossy at all. I took it as you were desperate for an answer. We have all been there before. Heck, in some ways we all are still desperate for answers. This is such a mysterious illness.

Take care,

Marci

Bookworm,

I’ve had tinnitus all my life, just the quiet type like you describe. I always thought that quiet was deffeaningly loud because that is when I could hear the tinnitus. I have slept with a fan since the third grade to drown it out. Now, the tinnitus is much louder in one ear, although when I started the migraine meds, the ringing returned to what I remember as a child. It has since returned but not as loud as it used to be a few years ago.

For me, my current tinnitus sounds like water running through a garden hose. Because of the way it sounds, I “assume” that it is related to a change in the blood flow around my inner ear being disturbed by migraines. I may be wrong though, just a theory based off of the way it sounds. I do have minimul hearing loss from time to time, but it returns to normal after a period of time. The confusing part is that my temporary hearing loss is in the lower frequencies, which is how I got a meniere’s diagnoses originally, nevermind that my hearing kept returning to normal and I had never experienced the spins, and had a whole list of extra symptoms that were being ignored.

OK, I’m ranting about a bad ENT again.
Brian

Bookworm,

I came down with off/on Tinnitus after an incomplete Eng. Had an extremely rought go with that test. One week later i began to have the Tinnitus. Doctor said i probably already had it but didn’t realize it. But i don’t buy it. I think the stress of the test brought it on…or i had a very slight bit of tinnitus (barely noticeable) and then the stressful eng made it worse??

Joe

I never suffered from tinnitus prior to the onset of my MAV, but I was tested by the ENT because I also had other vestibular problems which also evolved from my MAV Big Crash coming up to 3 years in March. I do get slight tinnitus now when things are going a bit tough but my biggest symptom is the pressure you talk about Bookwork, plus ear aches which I’ve never, in my life, ever had until my MAV. I started to get really bad ear aches mostly in my left ear, but would also shift to my right from time to time which was followed by big time ear fullness and pressure like I was coming down to land in a plane when you feel you need to open and shut your mouth to get your ears to pop. After three years, I’m a lot better and have found that these symptoms along with the others have slowly dissipated but still have not yet disappeared completely. When that time comes, I know I’ll be fairly close to my recovery (which I’m told by my neuro, will eventually come!! Hope springs eternal :lol: ).

I was tested for Meniere’s by an ENT and he also concluded that I did not have enough symtoms for him to conclude Menieres and he referred me to my neuro and hence the MAV diagnosis.
regards
Judy

— Begin quote from “joseph0952”

Bookworm,

I came down with off/on Tinnitus after an incomplete Eng. Had an extremely rought go with that test. One week later i began to have the Tinnitus. Doctor said i probably already had it but didn’t realize it. But i don’t buy it. I think the stress of the test brought it on…or i had a very slight bit of tinnitus (barely noticeable) and then the stressful eng made it worse??

Joe

— End quote

Heck, I wouldn’t buy that either. Of course you would have noticed it if you previously had it. I don’t doubt that the test could have made it worse!

Brian, Joseph and Dizzy thank you for responding. My ears are still making noises tonight though not as bad as the last couple of nights.

I still haven’t had an ENG test and I feel like I am holding up my own diagnosis by not taking it but I just cannot go through it.