Hoping your bad spell is over Jess.
Iām still morphing. Mostly for the better. Vertigo returned but much less severely than last visit. Subtle, almost! I had a day of almost silent tinnitus yesterday. As always imbalance is worst symptom. No longer get migraines. Remain off meds. Had two coffees today. So tasty. No major impact. Hoorah. Wonāt make a habit of it though.
@turnitaround Thank you James. Wow, a day of no tinnitis for you, that must be a record!! Sorry youāre still having some vertigo though. I hope it goes away for you without additional medication.
Yes, the bad spell finally ended, it lasted at least 7 weeks. I couldnāt even get out for my daily walk for 5 weeks and the first time I tried to walk I still almost fell over sideways twice and had to wait a few more days. I had to post-pone a psychiatrist appt 4 times because I couldnāt get out of the house to travel there. Now Iāve been out on my walk a few times, and even out as a passenger in the car twice. I saw a new neurologist today whoās a headache specialist, so at least thatās a step in the right direction. However she wants me to start magnesium for 2 weeks, then try Topamax. 15 mg from a capsule you can open and sprinkle over foodā¦and go up from there. Iām still terrified. Here I am with medication anxiety and she wants to start with topamax. I tried it once in the very beginning of the dizziness probably about 6 years ago at 25 mg but only lasted one day as it made my head feel so fuzzy and like I couldnāt think straight and since I was working at the time I couldnāt have that. I donāt know if thatās the medication I want to try though. My psychiatrist wanted me to try Lexapro but itās been a year now and Iāve only tried it twice 1 day each. I was going to try it again over Thanksgiving but had reactions to the stomach meds they put me on first to try to help with the Lexapro and that made me end up losing my nerve and questioning it all again. I just need to try something!!! The neuro today asked me what I was willing to try (something Iāve asked myself for years) and I still didnāt really know. My heart rate was high (I think Iāve been on the Xanax so long now that Iām probably nearing the possible necessity of having to increase the dose or find another med to help with the anxiety that at this point I think is being caused by the Xanax) and even though Iāve worn a 2 week heart monitor patch and the cardiologist wasnāt worried, this neuro didnāt want to try Ami or Nort because of the heart rate risk. Uggggh. Sorry for the rant Iām just so frustrated and scared. I know I need to try something but Iām afraid of the side effects. I just donāt get the Topamax choice, so few people seem to be able to tolerate it, why put a med sensitive person on it?
My neurologist said he didnāt want to try topamax (long term side effects?) because of my age (30). Maybe look into Effexor or propanolol? Those are the 2 he mentioned for me. Iām still trying the supplement route. Iāve been meaning to pick up coq and give that a try-- but Iām also nervous of putting anything new in my body for fear of reaction.
@Space_Cadet Yeah I am so unsure about the Topamax. I was reading about all the possible eye side effects. I already have eye pain and blurred vision from the MAV, I donāt need that increased. Iām also 30. I tried Propranolol but only lasted one day. I may be able to tolerate it if I force myself for a 2nd trial, since it is a short acting med. My new neuro doesnāt seem to like messing with blood pressure thoughā¦each doctor has differing opinions about the medicines and I just donāt know what/who to believe anymore. I feel like itās all conflicting and trial and error and I hate it.
Eye pain and blurred vision? Thatās awful! (I get the visual vibration sometimes, and also uneasiness when looking around more so when Iām symptomatic). Are you more dizzy than headaches? Or other way around?
Yep, the cocktail of medicine, sadly. I hate the idea of having to go through all sorts of medicine to find a perfect suited for one combo. I wish it was just take this antibiotic for X amount of days and youāre all set. Weāre a mixed bag of goods 
@Space_Cadet Yeah my MAV case is very severe, I have so many symptoms itās really unbelievable. I definitely have way more dizziness than headaches. Iām dizzy and symptomatic 24/7. Sometimes I can go a few weeks/months without a headache, although I do feel eye pain at least once a week (usually almost every day) and a lot of pain at the back of my head. Some would consider that a āheadacheā I guess. But the dizziness is what is ruining my life and stopping me in my tracks.
Yes, I too wish we could just take a medicine that we know would work. Suffering through any side effects knowing it would eventually work no matter what would be much easier.
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Just replying to thisā¦ Thatās horrid!
Iām not aware of eye pain, but sinus pressure in the face near the eyes.
I get the pain in the back of my head, which sometimes travels to the front. Usually itās on the right side of my head. Sometimes left side.
Yeah, the dizziness is getting to meā¦ Noticing more that dizziness is impacting me daily again. Iām more dizzy than headache.
Ageed about the medicine. Just wish itād be back to normal again. Just read your newest postā¦ 6.5 years of this rubbish!?