Hello all! I just came across this page today as I googled how birth control can affect MAV.
I haven’t been officially diagnosed with MAV, but it seems I’m on my way and I’m wondering if there are others like me.
When I was 8 years old I had two seizures. The only reason they found was due to constipation (weird sounding I know). A couple months after that I went back to the doctor because I had daily headaches with nausea. The EEG from my 2 seizures was abnormal, but nothing definitive, so IBS was my cause.
Flash forward to college (2011 or 2012) and I’m sitting in class and feel all the sudden dizzy. From what I remember I may have had a headache the day before and chalked it up to the pain pills. (I was used to monthly headaches and no pills ever worked completely). Anyways, the dizziness just never stopped so I learned to live with it. I always associated it with my stomach issues and stopped drinking sodas and eating fried foods for a year. That didn’t really change anything.
So a few month ago my dizziness turned more into vertigo. Harder to walk straight, wobbly legs, the feeling of falling while seated. What I’ve been going through the past years has debilitated me to a degree and it’s getting worse. I don’t go on grocery stores if I can avoid it. I avoid bright lights and I haven’t driven on the freeway in over a year.
I finally decided it was time now that I’m somewhat more financially able. I was referred to an ENT to ran a EVG/ENG test and discovered a 29% caloric decrease. I was sent to get an MRI and still need to do vestibular rehab which I’m nervous about (I’m sure ya’ll understand the anxiety doing anything with these conditions).
Anywho. I’ve been prescribed Meclizine which helps a little, but I wish it would do more. This fight is exhausting.
Very happy to have found this site…hope we can help each other!