Leg Pain, Leg Cramps, Leg Spasms,

Okay my legs are hurting and I do not know why…I went to the ER several weeks ago with them hurting they did a ultra sound to see if there was a blood clot said everything was okay on that front.

Someone tell me what this is or what it could be? Who should I go see about this, ie what type doctor? What additional test should I have done…

I am having cramps, spasms, twitching in both legs it is sometimes worse in one leg sometimes it hurts in both legs.

Just wondered if anyone has any input on this…

Hi Timeless,
I am so sorry to hear about your leg symptoms. It could be an electrolyte imbalance or dehydration. Since it is in both legs I doubt it is neurological. I would start with some blood tests with your GP. Until that time, stay well hydrated, maybe with some gatorade. Try to stretch if you can as well. Tylenol or advil for the pain.

I hope you feel better soon.

Warmest,
Lisa

— Begin quote from "MAVNY"

Hi Timeless,
I am so sorry to hear about your leg symptoms. It could be an electrolyte imbalance or dehydration. Since it is in both legs I doubt it is neurological. I would start with some blood tests with your GP. Until that time, stay well hydrated, maybe with some gatorade. Try to stretch if you can as well. Tylenol or advil for the pain.

I hope you feel better soon.

Warmest,
Lisa

— End quote

I stay very well hydrated so I do not think that is what it is. I strecth daily and am up and down stair a good bit…

What type blood test Lisa and what should they be checking for…

Thanks

HI Timeless,
The blood tests would be looking at your sodium and potassium levels (electrolytes). I can’t think of a specific doc to see, so starting with your GP makes the most sense. Keep us posted.

Do warm baths help?

Lisa

— Begin quote from "MAVNY"

HI Timeless,
The blood tests would be looking at your sodium and potassium levels (electrolytes). I can’t think of a specific doc to see, so starting with your GP makes the most sense. Keep us posted.

Do warm baths help?

Lisa

— End quote

Thanks Lisa…

I get this all the time. Do you find it worse when you have been using your legs, eg. bending down to do some housework etc. or walking around shopping, does it affect you through the night more?

Which part of the legs hurt? Mine is behind the knees and hamstrings. They ache more at night and almost feel like RLS. They have diagnosed me with ME, but only when they couldnt find anything else for all my symptoms. It is strange that people on this board also have the aching and the fluey symptoms and the exhaustion.

Most interesting question would be, for those whos heads and dizziness got better on a preventative, did they have the fluey aching beforehand and did it go as well with the preventative??

Christine

I’ve had a bit of what you describe, used to get it very occasionally but go through periods, like now, when it ramps up, mostly at night. The leg cramps can be extremely painful but they are never prolonged enough to worry me, although sometimes the sore after effect can last for days. I too thought it might be electrolytes but my potassium and sodium levels were fine. Thought it may be lack of magnesium but I take a supplement of that so dismissed that possibility. In the end, rightly or wrongly, I put it down to meno symptoms.

If you’re worried about it Timeless and it’s not getting any better I’d definitely get checked out by the doctor. On top of everything else it must be very hard to put up with.

Brenda

Hi Christine,
Re your question about aches and meds…
I also had the leg aches and exhaustion, both have got less , more or less gone with the meds. I still get occasional exhaustion if the dizzies come back…mainly with storms, but the aches seem to be mainly gone.
Weird eye feeling is still the thing that lingers and the last thing to go when I am having a good patch.
Hope this helps you !
Penny

Well I have an appointmet or two next week to see about this one with GP and other with ortho leg doctor .

One thing I did not or failed to mention is that my hair is not growing or is growing very little on both legs …does anyone know if that means anything concerning this issue.

And if they did an ultra sound to check for blood clot is that the same as looking for PAD…or is that a different test.

Hi Timeless,
Glad to hear you have some doc appointments in the near future set up. Yes, ultrasound is one modality that can be used to demonstrate PAD. Many patients with PAD are greater than 70 years of age. Patients can present with PAD at younger ages especially if they have a history of smoking and/or diabetes. In this case a vascular surgeon would be the best to see. Make sure you bring your ultrasound exam results to your doc appointments.

And with regards to hair growth… as women age it get less and less, so that may just be a natural part of the aging process. Less shaving!

Good luck and keep us posted,
Lisa

The orthopedic said he did not think this was a bone issue or muscle skelatal issue. He feels like this is most likely a nerve issue along the lines of Fibromyalgia or some other nerve disorder. My legs had felt better until yesterday and I woke with stabbing pain in the right leg yesterday morning it finally subsided by yesterday afternoon. Then I started having pain around the right knee and muscle spasms around the left knee. Then in the middle of the night I started having a stabbing pain around my left ankle that is still hurting now, it is like a pulsating pain on the outside of the ankle. It is pretty severe at times.

I have an appt with my PCP Thursday and I guess I need to go back to the neurologist to have further nerve test done…just wonder how long before I can get in to see him. This is so hard and I wonder if it will ever get better. One thing at a time to handle is enough…

I’m sorry you’re suffering with this on top of everything else. Please keep us posted after you see the doctor.

Hi Timeless,
Sorry to hear you are still suffering but I am glad at least PAD is ruled out. If this turns out to be a nerve issue, you may be prescribed something like neurontin or lyrica and this may also also help your MAV???

Keep us posted!
Best,
Lisa

Went back to my PCP yesterday and this is the plan for now. She is going to order a MRI of the back/spine to see if there is any problems there that could be causing the leg pains, ie pinched nerve, herniated disc, spinal stenois…and then I will go to neoroligist or spinal doctor if anything shows up that needs addressing. If not I will need to get nerve test and EMG (which I heard is very painful) to see if there is nerve damage.

She also thinks the anxiety is making everything worse and really wants me to see therapist to see if they can help me with that aspect of the illness.

If nothing improves or shows up to further indicate what is going on she has agreed to refer me to the Mayo Clinic if that is the option I want to pursue.

She ran a lot of additional blood test and the results will be in next week.

She rally wants me to try an antidepressant and I am still thinking about that aspect also…not sure which one, Lexapro is out, not sure which route to look at there…

Timeless - so sorry you haven’t yet got any definitive answers. Perhaps, you can take an antidepressant that also treats MAV. I forget - are you seeing a neuro familiar w/ MAV that you can speak to about taking an antidep that can be helpful for MAV?

— Begin quote from "MAVLisa"

Timeless - so sorry you haven’t yet got any definitive answers. Perhaps, you can take an antidepressant that also treats MAV. I forget - are you seeing a neuro familiar w/ MAV that you can speak to about taking an antidep that can be helpful for MAV?

— End quote

I have seen four neurologist and none of them really seemed as familiar with it as some of the experts we are all familiar with but the last two did feel that this was a migraine issue…and as I told you the specialist in the area I saw seemed a bit off with his recommendations.

I am sure that my PCP will be happy to prescribe whatever I feel would address both issues so now I am trying to figure out which way to go. My brother and mother have both taken Cymbalta and tolerated it well but it was for depression and or anxiety not MAV /anxiety. I have also heard Cymbalta is used for Fibromyalgia pain so I am not sure whether to try this or not. My problem is the MAV symptoms are at baseline where I can handle them most days without issues but the other symptoms are now worse and they may all be related I am not sure and no one else seems to have a clue either.