Life is like riding a bike

Specific Illnesses & Conditions VM/MAV
1

I bought this card when I was first sick with this crap… I thought it was quite apt for us guys.

I have an obsession with charity shops / thrift stores as you US folk would say and am displaying it on this fan I bought and hung on the wall… Hopefully you can see it… It has a pic of a bicycle and it says “Life is like riding a bike… In order to keep your balance, you have to keep moving.”

The great Albert Einstein said this…

Apt for us in general, to keep on moving on and pushing on to the next thing, especially Richy right now, and apt quite literally with our balance and walking! :slight_smile:

x

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2

Nice quotes MM…

The bicycle quote suits me perfectly… i love cycling, it makes me feel great… and when i stop… the dizziness is back haha!

I think you are also right with the Einstein quote… its good to keep going… to have a new focus … something to look forward to. We can’t give up guys :smiley:

3

That’s cool and VERY true! x

4

Totally true. Good quote. xxxx

5

Hey

I completely empathise with you on the worrying about the future, working, and money. I’m in the same boat. I have no idea what to do for the best.

However, ami is the drug that got me back to work. I was off sick for 4.5 months initially.I have to be honest with you, I can’t remember exactly the tritraion and the weeks etc. I’d have to look back through the old posts in the beginning here. You can click my name and have a look. But I’m pretty sure it started working within about 4 weeks.

I was able to get out the house and function. I was a long long way off ‘normal’. I think that comes with time and getting used to this condition, and adapting to it.

I believe I only really started getting much much better when I added Topirimate to it and even more time to adjust.

Stick with it- it’s a good drug.

With regards to the future, working, money etc… Since my relapse in early Jan, I have been thinking the same. I have very very difficult days at work. I am in a lot of debt. I wish I could consider a career swap to a different job in a less stressful/non office environment but it would mean a huge pay cut. I can only just about function money wise now, so I can’t afford a pay cut. It’s a viscious circle which doesn’t help the anxiety or depressive nature of this wretched condition.

I find I get bogged down with a ‘there’s no way out’ view on bad days. And it’s hard to get out. But on good days I feel it will be ok. I’m either up or down, black or white. I am going to see a counsellor tonight to try to find some ‘grey’ middle ground and perspective.

Where r u moving out of in 2 months?

6

I know that Blondie who sometimes posts on here was stable for a long time on 20mg Amitriptyline until she got pregnant and had a relapse. Now she is on ami and piz and doing well I believe. Hope this helps.

Didn’t you say in an earlier posting that you would be trying Propanolol next and then Topamax on the recommendation of your neuro? Might be an idea to ask them about it next week. What about the PR work from home you talked about before or are you not well enough for that yet? x :?

7

Well at least you know the next steps then if ami does not get any easier. I am trying to go up with nori too. I found 40mg too much but I seem to be tolerating 35mg ok at the moment. You could always try switching to nori if your doctor will let you because it is meant to have less side effects than ami. It’s worth giving them all a good go if you can then if they don’t work you know for sure. That is what I am trying to do although I did not stick it out long on a beta blocker. I may try adding Topamax if Dr S agrees x

8

MM could you give me a little break down of when and how ami helped you, i’m having a really tough time at the moment. The past two weeks have been absolute hell and i’m really losing the will to “keep moving” worrying about my future and how the hell i’m ever going to work or find money for my rent when i have to move out in 2 months!!

9

Hi, thanks that’s good to hear. I guess that with every dose increase i’m angering the migraine brain again. I’m seeing my neuro-otoligst next week - can’t believe it has been 3 months already since my first diagnosis! But i have had this for 6 1/2 months now in total. I did feel slightly sturdier at 10mg and then again at 20mg but not 25 is just taking alot longer to get used to. I’ll stick with it, i’m not a quitter but i am very bored and i have a very active mind!
I am lodging in a property, and have to move out in 2 months. very scary when i don’t have £ for a deposit!! x

— Begin quote from “missmoss83”

Hey

I completely empathise with you on the worrying about the future, working, and money. I’m in the same boat. I have no idea what to do for the best.

However, ami is the drug that got me back to work. I was off sick for 4.5 months initially.I have to be honest with you, I can’t remember exactly the tritraion and the weeks etc. I’d have to look back through the old posts in the beginning here. You can click my name and have a look. But I’m pretty sure it started working within about 4 weeks.

I was able to get out the house and function. I was a long long way off ‘normal’. I think that comes with time and getting used to this condition, and adapting to it.

I believe I only really started getting much much better when I added Topirimate to it and even more time to adjust.

Stick with it- it’s a good drug.

With regards to the future, working, money etc… Since my relapse in early Jan, I have been thinking the same. I have very very difficult days at work. I am in a lot of debt. I wish I could consider a career swap to a different job in a less stressful/non office environment but it would mean a huge pay cut. I can only just about function money wise now, so I can’t afford a pay cut. It’s a viscious circle which doesn’t help the anxiety or depressive nature of this wretched condition.

I find I get bogged down with a ‘there’s no way out’ view on bad days. And it’s hard to get out. But on good days I feel it will be ok. I’m either up or down, black or white. I am going to see a counsellor tonight to try to find some ‘grey’ middle ground and perspective.

Where r u moving out of in 2 months?

— End quote

10

— Begin quote from “Jem”

I know that Blondie who sometimes posts on here was stable for a long time on 20mg Amitriptyline until she got pregnant and had a relapse. Now she is on ami and piz and doing well I believe. Hope this helps.

Didn’t you say in an earlier posting that you would be trying Propanolol next and then Topamax on the recommendation of your neuro? Might be an idea to ask them about it next week. What about the PR work from home you talked about before or are you not well enough for that yet? x :?

— End quote

Hi jem, the plan changed for me to keep trying to increase the ami, but i’ll definitely talk to them when i see them next week, feels crazy to actually see them again after feeling so abanadoned for so long haha! Yes, i’m trying to find some freelance stuff but it’s hard, especially in the current climate! Hopefully i’m just having trouble adjusting to 25mg and it will even out again in a little while! :roll: x

11

— Begin quote from “Jem”

Well at least you know the next steps then if ami does not get any easier. I am trying to go up with nori too. I found 40mg too much but I seem to be tolerating 35mg ok at the moment. You could always try switching to nori if your doctor will let you because it is meant to have less side effects than ami. It’s worth giving them all a good go if you can then if they don’t work you know for sure. That is what I am trying to do although I did not stick it out long on a beta blocker. I may try adding Topamax if Dr S agrees x

— End quote

Yeah we discussed switching to nori, but i’m not actually troubled by tiredness so much anymore and my neuro seemed to think that was the only difference.