ha ha English is my second language, so you can imagine what happens to meā¦ when I teach is the worst! I think my reviews this semester are not going to be the best. What to doā¦ keep going!
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Exactly, keep living your life. I do a lot of public speaking. Sometimes when my thresholds are low I just come clean and give my audience a really short description of MAV. Sometimes I stumble and make a joke out of it. Sometimes Iām brilliant.
Ignore the reviews. You are still working. Thatās a Herculean task on its own. You get best marks from me!
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Thanks, that is so sweet. I think keep on living our lives is the best we can do. I have shared with some colleagues my diagnosis so they donāt think I am drunk or crazy, because I have sometimes to close my eyes or take more time to think things through. You are my inspiration @flutters Your posts remind me of still enjoy life despite this condition.
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And that was really sweet of you. Iāve had to learn to be honest about whatās going on with me. Itās hard, because I used to be a superstar. Now, well, sometimes I canāt remember how to spell or say my name. I laugh when I can. I remind myself that God doesnāt give these big challenges to the rookies. And I LOVE as much as possible. MAV gave me the gifts of vulnerability, flexibility, humility, empathy and so much more. Plus all my wonderful MAVerick friends!
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Sorry? Not quite with you there. Apart from the hot flushes, and MAV (which Iām sure is hormonal), menopause hasnāt bothered me at all. Unfortunate for me it brought the MAV backwhich I hadnāt had since puberty but yours is post partum so MAV may stop at menopause if it doesnāt go long before that is. Helen
it was a joke/ sarcasmā¦ my mom suffered a lot during her menoupause so i am afraid once i am done with this episode, hopefully before menopause, menopause is going to bring it backā¦
ā¦ i got it ā¦
I no longer own the requisite parts besides ovaries. Iām not sure how Iāll tell the difference between menopause and just MAV.
I use theraspecs or a blue light blocker whenever the lights bother me.
Plus f.lux. Anna showed us that one. I love it.
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I should own stock in electrical tape! Just like you, @dizzy3 I black out all of the appliance lightingā¦ I giggle to myself sometimes when I think why on earth my toaster, vacuum, televisions, washing machine, dryer, dishwasher, refrigerator need LED lightingā¦ itās like the new āfashionā for appliances! 
hahaha funny, the things we have to deal with
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I did wonder but it seemed so unlike you. From what Iāve read people who develop post partum MAV generally lose it completely after menopause so you should be OK. Iāve personally known several women who had classic migraine which only started post-partum and who have never had an another attack once their periods ceased. Take heart, and just to be sure Iāll wave my magic wand in your direction. Helen
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Thatās easy. If the flushing doesnāt cause you to feel hot, itās MAVā¦ If it does, itās menopause. Still, donāt suppose it matters either way over much. I spent years wondering why all the fuss about menopause. Why take HRT. Natural process. Been going on for ever. All I ever got was hot flushes. It was some years before I realised there might be connection with MAV. If there is, and in my case Iām virtually certain now there is, thatās the only other menopause symptom Iām aware of having. Helen
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Well, itās really a pity I donāt always heed my own advice. Actually I think Iād moved on from such intense hypersensitivity. Think I have really. Itās just this time of year with exceptionally low light level, and āThat Skyā the featureless, colourless dull winter sky that is the only outside light source - gets me much less often than It used to but still āgetsā me at times. This very morning, baking a savoury pie, moving around my kitchen without interior lights on, I have to move from natural window light passed chunk of solid wall (pretty dark) and then another lot of window light every time I cross from kitchen sink to cooker and worktops. I was feeling fine, balance spot on. Through the light complex, and suddenly almost had to grab the worktop to stay upright, my stomach turned over like on a rollercoaster, and within a few seconds, rear head pressure arrived. Guess Iām stuck like this now until Iāve slept over night. Thatās the way it goes. All because I hadnāt foreseen the necessity to put the interior lights on which meant it was slightly darker indoors than outside. Contrast Sensitivity itās called accordingly to my friendly local optician. Iāve alot of far less polite terms for it. Itās what rules out restaurant meals for me thatās for sure. It was following a pre-Christmas meal in a restaurant lit by everything but central brightness that tipped my MAV over into becoming chronic 24/7 four years ago next week or so. Helen
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Sorry to hear of this Helen. Mav is the weirdest illness ever! I hope you feel better when you wake tmrw!
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I most probably wouldnāt have posted this at all except for the timing. I thought it would illustrate to you, youāre not the only one. It all just shows how closely our eyes and balance system are linked. Ultimately the light sensitivity can/will knock oneās balance out completely. The reaction I described previously used to happen to me n times daily when I was first chronic and really increase the dizziness. Last winter I donāt remember it so much but it did occur sometimes. Today it took me by surprise although I donāt suppose it shoukd because Itās been a bad week balance-wise and I did feel I reacted couple of times in similar circumstances back along. Itās all gone bit hyper again I suppose for some reason. Odd really as Iāve been continually noticing more little improvements here and there. My ears are clear nearly all the time now and my neck turns to the right as far as to the left for first time in years. MAV doesnāt seem logical sometimes. Helen
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thanks dear @Onandon03 Helen, my sense of humor is great, it had been buried under this MAV 
sending you love your way too!
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totally agree with MAV changing us at a deeper human level. And I love having you all as friends as well.
Sorry your having a bad patch, hopefully it will calm again soon! I canāt wait for the day my ears donāt feel full anymore! This is a rollercoaster. Iāve been on pizotifen about 9 weeks now shall I give it longer?Lol x
Well, they reckon 10 weeks minimum. I assume Pizotifen is doing something to help you? Youāve noticed some improvements. I think you spoke to @janb about her timeline. Sheās done so well on it but still struggles with her ears. Must admit my ears have only really dramatically improved over last few weeks so lagging months behind some other symptoms but everyone is different. Has yr medic, GP?, whoever mentioned what they suggest to add in next? @Amylouise is on Pizotifen. How does yr progress compare? Virtually all other preventatives take up to four months accordingly to the experts. However, some seem to see some success with Amitriptyline in about a month. That doesnāt mean itās fixed though. Iāve had alot of success with Propranolol but I am where I am, and Iāve been taking it at higher dose 18 months so far. It took eight months to really kick in with me. Helen