Hi everyone. I am new here and would like to share my vertigo journey. I really hope some of you might relate and will be able to suggest things that helped you to cope better.
15 years ago, I used to have ringing in the ear, hearing loss, and massive vertigo attack once a month. I was diagnosed as Menieres Disease and tried everything including Betaserc, diuretics, and a low-salt diet. Nothing helped and I just had to deal with it. It disappeared after 3 years.
Fast forward to a month and half ago. I was 9 weeks pregnant and had hyperemesis where I threw up 40 times a day due to severe morning sickness. One night while throwing up, I had the scariest full-blown vertigo attack. The spinning was so violent that it brought on a panic attack. It lasted about 60 minutes. Since then, I have been having vertigo attacks every single day for the past 90 days :(.
With this comes unsteadiness, 24/7 dizziness, and everything that follows. The most difficult thing, however, is the unexpectedness of a vertigo attack. Sometimes it happens 3 times a day. Sometimes in my sleep. It usually lasts from 30 minutes to 3 hours.
I went to see really good doctors in Massachusetts (Dr Rauch) who are supposed to be best in the field of vestibular disorders. I was told my condition lies in between Menieres Disease and Vestibular Migraine. At this point, they are hesitant to try me on any medications due to my pregnancy. The only thing they suggested was verapamil along with some anti-nausea medications like Ondansetron, Benadryl etc which doesnt even touch my vertigo.
I follow migraine diets. I gave up caffeine, cheese, citrus etc. I try to be calm and positive since I wanted this baby for a long time.
But every single day I have these extreme attacks and I just feel lost and hopeless. Doctors think its not pregnancy related. I wake up and have a little oatmeal and then massive attack. It seems like it happens a lot after I eat something.
So i just became this person who is afraid of even walking outside because I fell few times. I have a very supportive husband and he is currently doing everything for us. Has anyone experienced DAILY vertigo attacks? Or attacks brough by pregnancy?
I just need some hope because I dont want to sink into depression.
Any thoughts or similar experience, advices are greatly appreciated.