First acute balance issues: Januari 2019
Number & duration of acute phase(s): 1 time feeling of falling on the couch + fear of heights. After that day several times waking up with rotational spinning vertigo in the morning.
Any suspicious physical event/trauma leading up to dizziness: A lot of stress + psychedelics. I think its a combination of a lot of stress and trauma which came up after deep spiritual experiences.
Start of chronic phase: After a few weeks
Age at chronic onset: 28
Started medication: June 2019 - Celexa 6mg by psychiatrist.
1 july 2020 - Flunarizine 5mg
Stopped medication: Until now
Number & type of consultants seen to date: Psychiatrist and recently a scientific consulent who works together with a doctor.
Diagnoses received (one I’m “running with” first): Panic/anxiety disorder, recently VM.
Medications used successfully for MAV: Celexa 6mg got me functional again. Dizziness got less but visual symptoms got worse and still not dizzy-free.
Failed medications for MAV: None
Non-pharmalogical treatment tried which helped: Exersize, healthy diet, walking
Non-pharmalogical treatment tried which didn’t seem to help :None
Dietary triggers identified: None
Any hearing loss in either ear: Nnone
Persistent or intermittent tinnitus and character: Persistent tinnitus left ear.
Other chronic conditions I’m suffering from: Prone to anxiety and depression.
Medication I’m taking for other conditions: None
Any personal history of migraines: In my youth I had a lot of headaches. Dont know if this were migraines
Any family history of migraines: Grandpa stopped working early because of chronic headaches. They were relieved by 2mg valium and paracetamol sometimes. Dont know if those were migraines as here was no diagnose in that time.
Any history of ear problems: Not really.
How did friends, family, and doctors react to your symptoms?:
Hard to understand, no expertise from professionals.
What’s Gone: Derealization, brain fog, severe dizziness, anxiety,
What’s Ongoing: A lot of visual problems; vision is swaying, objects grow bigger and smaller all the time. Feeling of falling forwards while walking/ stepping of a cliff feeling / sinking into the floor / pushing the floor away to the back while walking /
My Worse Day Now: Some brain fog and increased walking symptoms or severe visual symptoms like swaying room and objects which grow smaller and bigger.
Start of Journal
Currently i’m working full time again and i’m pretty functional. But as my visual symptoms are worsening and there are walking symptoms I still have, I recently went to a specialist in Belgium. He is an scientific consulent. He is no doctor but he is teacher in Medical physics, Vestibulogy and Space physiology. His first top med is Flunarizine which I recently started(2 days ago). He has a lot of succes with this medication even after weaning off.
I really think I can recover and I hope I will have good results with Flunarizine! I will keep you posted if it’s working!