First acute balance issues:
Number & duration of acute phase(s):
Any suspicious physical event/trauma leading up to dizziness:
I suspect the pressure in my ear while taking the train (a lengthy tunnel between FR and the UK) triggered the VAM
Start of chronic phase:
Age at chronic onset:
Amitriptyline because of low blood pressure and increased heart rate
Number & type of consultants seen to date:
1 ENT, 1 Neuro
Diagnoses received (one I’m “running with” first): Migraine variant(from ENT),and Vestibular Migraine (Neuro)
Medications used successfully for MAV:
Failed medications for MAV:
Non-pharmalogical treatment tried which helped:
Heal your Headache diet, and paleo diet (AIP)
Ginger for ear pressure
Seeing an orthoptist to train my eyes and getting new glasses, I feel it helped
Non-pharmalogical treatment tried which didn’t seem to help
Dietary triggers identified:
Not sure but: mushrooms, eggs and definitely coffee as it was the first thing that made me dizzy at first
Any hearing loss in either ear: No
Persistent or intermittent tinnitus and character:
Yes, in both ears, stronger in the left ear.
Other chronic conditions I’m suffering from:
Cervical herniated disc (happened beginning of November, unlucky…)
Medication I’m taking for other conditions:
Any personal history of migraines:
None. Never had a migraine before this. However was sick while travelling in cars / train until I was 13
Any family history of migraines:
Any history of ear problems:
How did friends, family, and doctors react to your symptoms?:
(Your current state)
What’s Gone: (what symptoms you had but no longer get)
Less spinning vertigo spells
What’s Ongoing: (what symptoms you still get)
High pitched sounds sensitivity
Nausea + Dizziness
Photophobia, phonophobia, spinning vertigo (did not have it in 3weeks, fingers crossed), tinnitus, sometimes fullness in ears, nausea, dizziness, feeling “jittery” (mini muscle spasms)
My Worse Day Now: (description of the worst day you get now)
High pitched tinnitus, Headache, brain fog, dizziness + nausea
Hi Everyone! Decided this is a good timing to post this as reading your personal diaries really helps me day to day!! Si, here is mine.
In May 2020 I was taking the train between France and the UK. There is a lengthy tunnel (30mn), and in that tunnel while looking at my laptop everything started to spin around me very violently. Felt as if the train had an accident.
Felt dizzy for a few days afterwards and then everything went back to normal;
I had a few more spinning vertigo spells, 2 while looking at my laptop, 1 in a restaurant. Took a blood test (was thinking maybe this is due to low iron levels, everything came back OK).
September I started Teacher training in the UK. As time went by, I could feel myself growing more and more sensitive to the artificial lights and sound. I would have mini spinning vertigo spells that made me affraid to have vertigo in front of students. Decided to take a break from the teacher training
October I wasn’t feeling any better with rest, super sensitive to lights (everything had to be dark in my flat), going outside was hard because of the sun, and worse at night with the car flashes. Walking with my boyfriend was difficult, I had to keep focusing on my feet and have sunglasses + a cap to be able to go outside.
Unaware that my issue was vestibular, I thought I had eye issues, I decided to go back to France (where my mother lives) to run a few exams.
Taking the train back was an horrible experience, during the 30mn tunnel I honestly thought I would die because of the pressure in my ears. Then for a week felt extremely dizzy, things were moving, my mother talking to me would trigger a mini spinning attack, my ears were full and tinnitus roaring.
At first, The ENT and GP did not give any medicine, I decided to try the “heal your headache” diet and I can tell the difference : no more vertigo spells and migraine intensity decreased by the end of October
My ENT diagnosed me with vestibular migraine (but was hesitating as he could see that the HIT and caloric tests showed right ear impairment). He gave me propanolol to try.
My Psychiatrist gave me Amitriptyline 5mg to try (3rd day on it) and I decided to try it rather than propanolol.
Update: saw a neuro today (23/11) and she thinks Amitriptyline should work for my migraine and she wants me to stick to it for at least 6 weeks.
She wants me to increase 1mg every 2 days to reach 15mg.
3rd day on Ami 5mg, I have the feeling my light sensitivity has decreased a bit, however I feel very jittery (as if high on coffee) and stressed out. I also have drier eyes.
Comorbidity: after severe shoulder pain, a cervical RMI showed I have a cervical herniated disc last week. Yay!!
Thanks a lot for taking the time to read this I will keep you posted of any latest development! I honestly feel quite down sometimes…
Especially since I am experiencing more nausea and anxiety with the Amitriptyline ugh ! But it has only been 3 days… Hope it is recesses!
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